Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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GERD, Tube weaning and what's possible ?

Started by Inderaj Sehmi in Tube Weaning. Last reply by Inderaj Sehmi Jan 17. 8 Replies

Bottle Adversion

Started by Jessica Goodsman in Tube Weaning Jan 17. 0 Replies

Child with reflux refuses to eat

Started by Aleksandra Paluhina in GRAZ FAQ. Last reply by Inderaj Sehmi Nov 28, 2016. 8 Replies

No plan for NG tube weaning

Started by Kerry in Tube Weaning. Last reply by Sharmeen Aug 1, 2016. 1 Reply

Attempting a Wean at Home

Started by Rebekah Barney in Tube Weaning. Last reply by lynn melhuish Apr 18, 2016. 5 Replies

Help with drinking

Started by Amy Lynn Holt in Tube Weaning. Last reply by Eva Kerschischnik Apr 1, 2016. 1 Reply

Maintaining suck and swallow skills

Started by Shaindy in Tube Weaning. Last reply by Eva Kerschischnik Apr 1, 2016. 1 Reply

Tube wean for free - NoTube

Started by Eva Kerschischnik in Tube Weaning Dec 14, 2015. 0 Replies

Next steps after no tube

Started by Julia Hodgkins in Tube Weaning. Last reply by Julia Hodgkins Nov 18, 2015. 2 Replies

Losing weight in Tube weaning

Started by Pragathi Vasireddy in Tube Weaning. Last reply by lynn melhuish Nov 17, 2015. 3 Replies

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Donation to TFK

The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD. 

If you are willing and able to contribute, please deposit money into paypal account karelle8@bigpond.net.au. Unfortunately you can not pay NING direct. thanks Karelle

 

Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2015.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Inderaj Sehmi replied to Inderaj Sehmi's discussion GERD, Tube weaning and what's possible ?
"Hi Laura, thanks for your response. Please don't stop the reflux medicine until the little one is stable after a few weeks. We mistakenly stopped giving omeprazole during the wean and after 25 days of no tube, where my son was drinking and…"
Jan 17
Laura Hansen replied to Inderaj Sehmi's discussion GERD, Tube weaning and what's possible ?
"Hi there My daughter was tube fed for almost 3 months (8months -11months) for failure to thrive due to really bad oral aversion, GERD, and constipation. I just pulled the tube (hopefully for good) about 20 days ago. It took a few days for her to…"
Jan 17
Jessica Goodsman posted a discussion

Bottle Adversion

Son has been on IV nutrition majority of his life due to have NEC and then 6 surgeries trying to get his intestines to work properly. He finally came home at 7 months. He has been home almost for a month now. He loves his pacifer, soothe brand, just started eating baby food but shows no interest in the bottle. We have speech hopefully starting soon but the surgeon is hoping we can get him off the tube in the next 30 days. Any tricks or suggestions to help with latching? Certain nipples? Sippy…See More
Jan 17
Profile IconNoku, Olga, Emily Haala and 75 more joined Tube Fed Kids - Deserve to Eat
Jan 15
Leah replied to Cassandra Marlowe's discussion What are some good cups or bottles for tube weaning
"My daughter is 12 mo. She hasn't taken a bottle since around 6 mo. However, our therapists started her with a straw and I like this cup the best because my daughter insists on doing everything herself. Its not hard to get liquid out and no…"
Dec 3, 2016
Inderaj Sehmi posted a discussion

Weaning and the effect of the pacifier

Hello everyone,Just wanted to find out from all the parents out there who have had a successful or unsuccessful wean if anyone of their young ones were attached a pacifier during the wean ?. If so, what were the effects?  was is suppressing hunger when you reduced the milk volumes, did you get rid of it slowly over time and did that improve his sucking on bottle or eating ?.I ask cause my little one has been using the pacifier since he had his VSD work around in hospital. Since he wasnt taking…See More
Dec 1, 2016
Inderaj Sehmi replied to Inderaj Sehmi's discussion GERD, Tube weaning and what's possible ?
"Hi Daniela, Will let you know how things are going with net coaching. We are on day 5 so far and although we have reduced his volumes, no hunger signs yet. I really hope my Son can connect the dots and his hunger kicks in and he associates it with…"
Dec 1, 2016
Cassandra Marlowe posted a discussion

What are some good cups or bottles for tube weaning

My daughter is also 9 months and has been on a feeding tube since she was a month old when she still was in the nicu she was transferred to peds and took a few bottles here and there but because of the mass on her liver couldn't handle the volume so kept an ng tube at 10 ml and hour continues and was put back on TPN then after her liver resection they put in a NJ tube so she could handle more volume and take her off the TPN. Well after 3 months when she pulled it out and going to two different…See More
Nov 29, 2016
Inderaj Sehmi replied to Aleksandra Paluhina's discussion Child with reflux refuses to eat
"Hi Alexandra, Reading your story it would appear were in a similar posotion. My son has GERD too and we've just started the Graz online programme. He plays with the food which coincidentally also ends up in his mouth swallows it etc but he…"
Nov 28, 2016
Daniela Pal replied to Inderaj Sehmi's discussion GERD, Tube weaning and what's possible ?
"I had to give it up for now... I was afraid to further reduce calories without having some medical support and monitoring. I am still struggling to make her drink by mouth; I don't know what else to try. The team we are with does not help much;…"
Nov 28, 2016
Inderaj Sehmi joined Daniela Fowler's group
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Tube Weaning by Email Coaching

Information, updates and support for tube weaning in your own home by email coaching from the Graz Feeding Clinic
Nov 27, 2016
Inderaj Sehmi replied to Inderaj Sehmi's discussion GERD, Tube weaning and what's possible ?
"Hi Daniela, Thanks for your reply.  How's the home weaning coming along ? We've started a wean programme with Graz and we're at day 3 today. Son has already lost approx 100grams but we're seeing that the reflux is less…"
Nov 27, 2016

Blog Posts

I "OWE" MY STORY

Posted by Maki volk on October 23, 2016 at 1:30pm 1 Comment

Hi everyone,

as my subject says I "owe" this forum my story. Especially to Olga that was a huge encouragement and source of amazing info. She probably does not even remember me, it was in 2013. Hi, Olga!!!!

My kid was full term, born with low sugar. We ended up in NICU, her sugar got normal with usual treatment, they treated jaundice too. Once that was out of the way and she recovered she would not eat. She would eat 10-15 ml, sometimes full feed orally (mostly…

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New to the group, looking forward to reading more

Posted by Leslie Van Zee on September 21, 2016 at 10:34am 4 Comments

I wanted to post since I can see that there aren't a lot of people on here recently. Just in case someone else cruises this and is going through similar challenges right now as well. 

My daughter Roxie was born at 29 weeks. She's 10 months old, 7 months adjusted at this point. She has been on an NG tube since birth. At 3 months of age she had open heart surgery and came home for the first time when she was 4 months old. She came home with oxygen tanks which, thankfully, we…

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When and where to go for tube weaning for our micro preemie DD

Posted by CCRC on September 1, 2016 at 2:52pm 3 Comments

Hi all,

I am a mother a micro preemie who just turned  seven month this week  (birthday wise).My daughter was born at 25 weeks 5 days in January 2016 and was in the NICU for almost 4 months. She underwent ROP laser surgery when she was in NICU, currently she is on omeprazole for GERD but do not have any other medical issue other than the feeding NG tubes that we know of. Her swallow test was fine too.

When she was discharged from the NICU (May, 18th), she used to take 60ml/3hr…

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don't loose it

Posted by lynn melhuish on January 31, 2016 at 12:25am 0 Comments

hiya everyone.

I always pop in and out of the site even though our tube wean has been successful because of being on here. I really hope the site doesn't loose all the top information on it as it it not been used as much. facebook is useful but it isnt as compact as on here. 

good luck to everyone

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