Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues



Weaning and the effect of the pacifier

Started by Inderaj Sehmi in Tube Weaning. Last reply by Inderaj Sehmi Apr 9. 1 Reply

GERD, Tube weaning and what's possible ?

Started by Inderaj Sehmi in Tube Weaning. Last reply by Inderaj Sehmi Jan 17. 8 Replies

Bottle Adversion

Started by Jessica Goodsman in Tube Weaning Jan 17. 0 Replies

Child with reflux refuses to eat

Started by Aleksandra Paluhina in GRAZ FAQ. Last reply by Inderaj Sehmi Nov 28, 2016. 8 Replies

No plan for NG tube weaning

Started by Kerry in Tube Weaning. Last reply by Sharmeen Aug 1, 2016. 1 Reply

Attempting a Wean at Home

Started by Rebekah Barney in Tube Weaning. Last reply by lynn melhuish Apr 18, 2016. 5 Replies

Help with drinking

Started by Amy Lynn Holt in Tube Weaning. Last reply by Eva Kerschischnik Apr 1, 2016. 1 Reply

Maintaining suck and swallow skills

Started by Shaindy in Tube Weaning. Last reply by Eva Kerschischnik Apr 1, 2016. 1 Reply

Tube wean for free - NoTube

Started by Eva Kerschischnik in Tube Weaning Dec 14, 2015. 0 Replies

Next steps after no tube

Started by Julia Hodgkins in Tube Weaning. Last reply by Julia Hodgkins Nov 18, 2015. 2 Replies




Donation to TFK

The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD. 

If you are willing and able to contribute, please deposit money into paypal account Unfortunately you can not pay NING direct. thanks Karelle


Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2015.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

Read Before You…


Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…


Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.



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Latest Activity

Terence M. Dovey updated their profile
Oct 18

Blog Posts

Wanted to share - Teddy off the tube and is eating wonderfully now :)

Posted by Hannah McMahon on February 10, 2017 at 8:03am 0 Comments

I wanted to come back and post about my son's journey to give hope to those in this forum. I am so thankful to have found this forum when I did and am grateful for all the people who gave us advice/input. Thanks also to Markus for the Skype session that we had back then, which helped us in our time of…



Posted by Maki volk on October 23, 2016 at 1:30pm 1 Comment

Hi everyone,

as my subject says I "owe" this forum my story. Especially to Olga that was a huge encouragement and source of amazing info. She probably does not even remember me, it was in 2013. Hi, Olga!!!!

My kid was full term, born with low sugar. We ended up in NICU, her sugar got normal with usual treatment, they treated jaundice too. Once that was out of the way and she recovered she would not eat. She would eat 10-15 ml, sometimes full feed orally (mostly…


New to the group, looking forward to reading more

Posted by Leslie Van Zee on September 21, 2016 at 10:34am 3 Comments

I wanted to post since I can see that there aren't a lot of people on here recently. Just in case someone else cruises this and is going through similar challenges right now as well. 

My daughter Roxie was born at 29 weeks. She's 10 months old, 7 months adjusted at this point. She has been on an NG tube since birth. At 3 months of age she had open heart surgery and came home for the first time when she was 4 months old. She came home with oxygen tanks which, thankfully, we…


When and where to go for tube weaning for our micro preemie DD

Posted by CCRC on September 1, 2016 at 2:52pm 3 Comments

Hi all,

I am a mother a micro preemie who just turned  seven month this week  (birthday wise).My daughter was born at 25 weeks 5 days in January 2016 and was in the NICU for almost 4 months. She underwent ROP laser surgery when she was in NICU, currently she is on omeprazole for GERD but do not have any other medical issue other than the feeding NG tubes that we know of. Her swallow test was fine too.

When she was discharged from the NICU (May, 18th), she used to take 60ml/3hr…



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