Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Time to wean 7 month old?

Started by Sammie in Tube Weaning. Last reply by Olga yesterday. 17 Replies

Second attempt of wean

Started by Heath pittiglio in Tube Weaning. Last reply by Christine S. Oct 15. 2 Replies

NG-Tube Wean for 5-month Old

Started by Ernest in Tube Weaning. Last reply by Christine S. Oct 15. 14 Replies

NG Tube Weaning - 16 month old

Started by Cindy in Tube Weaning. Last reply by Jennifer Berry Oct 11. 15 Replies

NoTube - Sweden on Facebook

Started by Eva Kerschischnik in Tube Weaning Sep 29. 0 Replies

 

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Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

David Borden joined Markus Wilken's group
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Home Based Tube Weaning

A lot of families started a home-base weaning. I would like to discuss the experience you made and would share my experience with the home-based weaning. Everybody is welcome to discussMarkus See More
2 hours ago
David Borden replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Thanks again for sharing.  Markus has just friended me here so I know he read the message I sent him :) It's good to know that we are probably on the right track with all of the offering and trust building we are doing.  It sure is…"
2 hours ago
David Borden and Markus Wilken are now friends
3 hours ago
Jessica Esperanza commented on Jessica Esperanza's blog post Sierra Rose and her NG tube
"Thank you for your "completely biased, "voice on the internet" two cents" they mean a lot!  We have stopped breast feeding for now, as it is just too much with trying to do things with the bottle.  Breastfeeding had…"
7 hours ago
Jessica Esperanza posted a blog post

NG to G-Tube how did you decide?

I have read quite a few parents (here and on other forums) saying that they are glad they made the decision to go to G-tube from NG.  It is something I am having a very hard time wrapping my mind around.  Can anyone talk about the procedure itself and the healing process.  If a baby is able to drink just not enough yet, is it better to get the G-tube or try to give her more time before taking that step?  What steps did you take before going for the G-tube, including what types of specialists? …See More
8 hours ago
Olga posted a discussion

informative article on HOW MUCH a baby eats

(thanks to Jerome K. for passing this my way):http://www.babycareadvice.com/babycare/general_help/article.php?id=8#639Milk amount are *estimates* and there are many factors behind why babies eat more or less than the "recommended" or "needed" amount. Something to think about when being given strict numbers!See More
9 hours ago
Olga replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Oh boy. I just had a discussion with the lovely lead OT at Seattle Children's, and we both talked about how TRUST is central to getting kids to eat (central to anything, really -- isn't that the foundation of our relationships??). What…"
11 hours ago
Olga and Jerome Kaidor are now friends
11 hours ago
David Borden replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"I just wanted to  post an update. Eli is over 17 months now.  He has been in very good health and is running around like a mad man happy as could be.   We don't really even try to offer him bites any longer because he just fights…"
yesterday
Olga replied to Sammie's discussion Time to wean 7 month old?
"Yes!!"
yesterday
Olga replied to Olga's discussion This "therapy" is common, and it breaks my heart
"I know.  :-(  It all depends on the approach of your given hospital. I guess we're in some granola bubble here in Seattle, because we have so many talented therapists who are child-led (and two of them at least are in senior positions…"
yesterday
Sammie replied to Sammie's discussion Time to wean 7 month old?
"Ok. Thank you so much for the encouragement and reassurance that all is well. As you know, the not knowing is the hardest. She ended up with an all time high today of bottle intake!"
yesterday

Blog Posts

NG to G-Tube how did you decide?

Posted by Jessica Esperanza on October 23, 2014 at 6:18pm 0 Comments

I have read quite a few parents (here and on other forums) saying that they are glad they made the decision to go to G-tube from NG.  It is something I am having a very hard time wrapping my mind around.  Can anyone talk about the procedure itself and the healing process.  If a baby is able to drink just not enough yet, is it better to get the G-tube or try to give her more time before taking that step?  What steps did you take before going for the G-tube, including what types of…

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Sierra Rose and her NG tube

Posted by Jessica Esperanza on October 17, 2014 at 5:54pm 4 Comments

Sierra spent her first three weeks of life in the NICU.  She had a body cooling procedure where they dropped her body temperature to try to minimize the brain damage she experience due to a lack of oxygen during birth.  She was on morphine for the pain and phenobarbital because she had a seizure her first day in response to the trauma of birth.  During most of her stay she was intubated and fed through a tube.  Eventually all medical intervention was removed besides the ng feeding tube and…

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Duocal

Posted by Nancy Gopstein on October 7, 2014 at 5:16am 1 Comment

Hi, we weaned my son from his g-tube last Dec.  I have a bunch of cans of Duocal, all still good (exp dates of 2015 and 2016).  I'm not sure if I'm allowed to offer the Duocal to anyone on this site or not???

Heaths wean

Posted by Heath pittiglio on September 28, 2014 at 10:09pm 0 Comments

Day 2 starting to drink in a sence water, had some tastes if biscuit veg puree, pear puree. Very clingy loves his mummy. Took a while to get to sleep tonight. Tomorrow a new day.
Heath is doin a partial wean leaving the tube in having 450 mls per 24 hr 90 @ afternoon tea, 180 mls after dinner, then about 9pm. Hopefully he starts to eat more n more. Not sure what to do Re neocate as he does nit like it. Decided I will get him drinking water first.

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