Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Question about intensive feeding clinic

Started by Heather Vandike in General Discussions. Last reply by Nicole Hahn 14 hours ago. 9 Replies

Chiropractor?

Started by Heather Vandike in Alternative Therapies and Medications 17 hours ago. 0 Replies

Feeding Suggestions?

Started by Manuella Brown in Tube Weaning. Last reply by Lilly Almeida yesterday. 11 Replies

Need Advise Urgently

Started by Kim Cameron in Tube Weaning. Last reply by Patty LaFratta yesterday. 1 Reply

Anyone gone against doctors orders?

Started by Becky Gourlay in Tube Weaning. Last reply by Olga on Wednesday. 8 Replies

weaning off nasalgastric tube onto bottles

Started by Lisa wilkinson in Tube Weaning. Last reply by Olga on Tuesday. 1 Reply

Emma is tube few after just 4 days

Started by Melanie Rieger in Tube Weaning Success Stories. Last reply by christine beyton on Monday. 25 Replies

 

Notes

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Rebecca Miller commented on bellsmama's blog post The sad story with a happy ending..
"Wow, you have a lovely nack for writing these things down in a way that truly expresses just how frustrating these things can be for families (and for the poor kids as well). My daughter will be four in just over a month and we only got her g-tube…"
44 minutes ago
Olga left a comment for Amy Griffiths
"hi amy -- i couldn't quite figure out how to reply to your message re. net coaching, but here's my two cents:  - i think it can be challenging with the time difference between austria and the west coast; - netcoaching will give you…"
5 hours ago
shoshana and tish luka are now friends
9 hours ago
Andrea left a comment for Asa Marie Nilsson
"Your little girl is beautiful!"
9 hours ago
Andrea commented on bellsmama's blog post The sad story with a happy ending..
"Your story brought tears to my eyes. My little girl was scheduled for a G tube on the 23rd of this past december but thanks to Graz and another family I met in my town I was able to wean my daughter this past november from her ng tube. I can relate…"
10 hours ago
Olga replied to Pendo Chitde's discussion Cross posted in tube weaning - baby won't eat from mom!!! in the group Home Based Tube Weaning
"i would say watch her and see how's she feeling. maybe start out with just once, and while she's sucking you cuddle her and tell her all sorts of loving things, so that it becomes a super-cozy experience. then redip the paci -- since if…"
10 hours ago
Pendo Chitde replied to Pendo Chitde's discussion Cross posted in tube weaning - baby won't eat from mom!!! in the group Home Based Tube Weaning
"Interesting approach, Olga, and a great idea to try. I love all of the input. I can't say it enough; this forum has been so helpful to me! Thank you all. A quick question, Olga: would you think it would be better to repeatedly dip the paci in…"
10 hours ago
Andrea posted photos
10 hours ago
Olga replied to Pendo Chitde's discussion Cross posted in tube weaning - baby won't eat from mom!!! in the group Home Based Tube Weaning
"what about a stepping-stone approach, ie, you hold her skin-to-skin, give her kisses near her mouth, then offer her a pacifier with some milk on it? so that you help calm down that initial nervousness? and then once she's ok with "mom…"
10 hours ago
Andrea replied to Varsha Vanikar's discussion Has Anyone Had Success Transitioning from Sleep Feeding to Awake Feeding with Bottle Averse Baby
"We still dream feed our 1 year old. She will take a little bit on her way to a sleepy state but by no means completely awake. I find if she refuses her afternoon nap that she misses out on that feed, however we are relaying more on solids now which…"
11 hours ago
Pendo Chitde replied to Pendo Chitde's discussion Cross posted in tube weaning - baby won't eat from mom!!! in the group Home Based Tube Weaning
"Liz, that is a good idea and I will give it a try. She has some sensory issues, so I'm not sure how she'll react, but I've lost nothing by trying, and it may help. She tends to get very anxious and nervous when I try to feed her -…"
11 hours ago
Patty LaFratta left a comment for Ana Bertran
"Hi Ana!  Welcome to this awesome group of parents!   Patty LaFratta--peds dietitian"
11 hours ago

Blog Posts

Donation of Simply Thick and Elecare Unflavored & Vanilla

Posted by Lilly Almeida on May 17, 2012 at 4:13am 0 Comments

Hi Guys,

 

I would like to donate some Simply Thick and Elecare that I have at home but, I don't know how to do that. Does anyone needs it in here? I could put them on ebay with a symbolic fee and accept your bit or something like that...you will just need to pay for shipping fees inside the US would be better.

Any other ideas?? Tks, Lilly.

 

A Little Success!

Posted by sarah buckbee on May 16, 2012 at 12:24pm 2 Comments

On a whim, I decided to try rice cereal again today. I prepared about 1/2 Tbsp cereal and prepared myself for a gagging-choking episode to follow the first spoonful.  Allison only gagged once.  Woo hoo!  Granted, I gave her tiny spoon "half-fulls" and kept her very distracted with silly sounds, but I call that success.   Breastfeeding is going well--about 1 1/2 oz all day--we have to vent before tube feeds to relieve gas, so I monitor breastfeeding intake while I am relieving gas.  It feels…

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sad little ancecdote

Posted by Olga on May 15, 2012 at 3:42pm 0 Comments

i just got back from an all-day conference on healthcare, specifically, "communicating with patients about medical errors"

[incidentally: what came up: if we don't tell the hospital about the mistakes they made, about how the care fell far short of "good", about our suffering, then they can't change. so if you can, if you feel like it, let them know where they screwed up!]

i spoke very briefly as a patient advocate. during break, a woman came up to me and said her son…

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The sad story with a happy ending..

Posted by bellsmama on May 12, 2012 at 11:01am 5 Comments

  Bella is a happy little girl. She's 2 (almost 3), and she has defied statistics that said she'd be either dead or deformed and/or severely delayed in her development. She doesn't care what they said. She walks, talks, and plays like a regular kid her age. She draws (really, really well for her age!) and can identify 98% of the alphabet by sight in or out of order. She can count to 7 and knows numbers up to 10 by sight, and she is fond of the color blue. She has recently started singing…

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