Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

Members

Forum

Update on the weaning

Started by Ana Morao in Tube Weaning. Last reply by Olga 8 hours ago. 1 Reply

PEG op gone very wrong - family needs help

Started by Janelle Aronsten in Mums Needing Support - NOW. Last reply by Janelle Aronsten Nov 20. 2 Replies

A Unsafe swallow - NG tube

Started by Anna Kheradmand in Mums Needing Support - NOW. Last reply by Kay Korsg Nov 10. 3 Replies

weaning my 6 month old from G-tube?

Started by bttrflyvld in Tube Weaning. Last reply by bttrflyvld Nov 9. 1 Reply

 

Notes

Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

Continue

Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

Read Before You…

Continue

Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

Continue

Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

Events

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

SP replied to SP's discussion 8 month Old - Wean started 13th Nov 2014!
"Ok so a quick progress report. Started the wean 2 weeks ago and are at 30% reduction. LO has for the first time taken an interest in feeding orally and has been taking some milk and food orally for the past week. This has been relatively low…"
3 hours ago
Olga replied to Ana Morao's discussion Update on the weaning
"Yikes! It's a bad season to be a new eater! Especially around all those other little virus-carriers! Glad that she is feeling better, and that she had grown after weaning. The coughing and stopping would be concerning, for sure -- but perhaps…"
8 hours ago
Ana Morao posted a discussion

Update on the weaning

Hi All,It has been two months since we weaned our baby girl, who is now 12 months.(http://tubefedkids.ning.com/forum/topics/tube-weaning-9-5-months-baby-takes-no-milk)With her ups and downs she was doing great and slowly gaining weight. But then last week she got a stomach flue and her second ear infection in two weeks. And decreased her intake of food and drinks to the point that on sunday she was…See More
yesterday
Olga and carrie are now friends
Sunday
Olga left a comment for carrie
"Ok, this should work for the Parents_Amanda%20Weaning%20Plan.docxwean plan: "
Saturday
Olga commented on carrie's blog post Need advice please!!
"So I've attached a sample wean plan that a mom with an NG baby used to wean her little one off, and she kindly gave a copy for people to take a peek at.  The NG can definitely aggravate reflux, as it holds the sphincter at the top of the…"
Saturday
Tina is now a member of Tube Fed Kids - Deserve to Eat
Saturday
carrie commented on carrie's blog post Need advice please!!
"Also...any suggestions of how i should go about slowly weaning over a week? Currently hes on 5 feeds of 130ml a day"
Saturday
carrie commented on carrie's blog post Need advice please!!
"Hi . Thank you for your reply. He seems happy for the most part but there are still times in wants the bottle and when hes eating or swallowing sometimes you can tell hes still in pain. The doctors have him on prevacid and say hes at the highest…"
Saturday
Olga commented on carrie's photo
Thumbnail

parker

"such a cutie pie! he looks like an old soul :-)"
Saturday
Olga commented on carrie's blog post Need advice please!!
"Hi Carrie!here are a few thoughts: 1) Is his reflux under control? If eating causes him pain, he won't want to eat. If you are still seeing symptoms, such as arching or crying after a tube-feed, get his meds adjusted so that he is pain-free. 2)…"
Saturday
carrie posted a blog post

Need advice please!!

Hi everyone. I am a new first time mom of a beautiful baby boy named parker. He is 17 weeks old and 8 of those weve spent in hospital for a couple different issues. He was born full term at 41 weeks but he suffers from silent reflux and the doctors say that is why he refuses to eat enough . He had a ng tube put in 4 weeks ago and seems to be refusing the bottle even more now thab before. Im scared to death of him becoming dependant so i am going to pull the tube in the next week or 2 but i was…See More
Saturday

Blog Posts

Need advice please!!

Posted by carrie on November 22, 2014 at 2:56pm 4 Comments

Hi everyone. I am a new first time mom of a beautiful baby boy named parker. He is 17 weeks old and 8 of those weve spent in hospital for a couple different issues. He was born full term at 41 weeks but he suffers from silent reflux and the doctors say that is why he refuses to eat enough . He had a ng tube put in 4 weeks ago and seems to be refusing the bottle even more now thab before. Im scared to death of him becoming dependant so i am going to pull the tube in the next week or 2 but i was… Continue

EDS twins

Posted by Catherine Halliday on October 28, 2014 at 1:29am 0 Comments

All three of my children have EDS
all three have severe laryngomalcia (amongst other issues) 2 year old daughter has had tubes on and off in first year of life but twin boys (4months) have been sent home from their surgeries with them. Ng 6fg. Have been trained to feed but not put new one in when pulled out. Max once pulled out his 3 times in a day. Going to be interesting ..... -_-;

14 month old mostly stopped eating.

Posted by Joanna Markell on October 27, 2014 at 5:30pm 0 Comments

My 14-month-old daughter has a g-tube. She was doing great eating solid food (purees mostly) until two months ago when she got sick after her 1-year vaccinations.

Now she’ll eat a few tiny bites of fruit or yogurt, but doesn’t want a spoon anywhere near her mouth. It’s been frustrating — she was doing so well!

Quick background: She started with a g-tube at 6 weeks (FTT at 3 weeks), and moved to the g-tube at 10 months. No diagnosis at this point, but we’ve seen nearly every…

Continue

NG to G-Tube how did you decide?

Posted by Jessica Esperanza on October 23, 2014 at 6:18pm 1 Comment

I have read quite a few parents (here and on other forums) saying that they are glad they made the decision to go to G-tube from NG.  It is something I am having a very hard time wrapping my mind around.  Can anyone talk about the procedure itself and the healing process.  If a baby is able to drink just not enough yet, is it better to get the G-tube or try to give her more time before taking that step?  What steps did you take before going for the G-tube, including what types of…

Continue

Videos

  • Add Videos
  • View All
 
 
 

Badge

Loading…

© 2014   Created by Karelle.   Powered by

Badges  |  Report an Issue  |  Terms of Service