Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues



Losing weight in Tube weaning

Started by Pragathi Vasireddy in Tube Weaning. Last reply by Oliviane Sep 24. 1 Reply

Mediathek - NoTube

Started by Eva Kerschischnik in Tube Weaning Sep 10. 0 Replies

Child with reflux refuses to eat

Started by Aleksandra Paluhina in GRAZ FAQ. Last reply by shaermin Aug 25. 5 Replies

Tube Weaning Heart Baby

Started by Amber Bowie in Tube Weaning. Last reply by Jemma Aug 4. 6 Replies




Donation to TFK

The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD. 

If you are willing and able to contribute, please deposit money into paypal account Unfortunately you can not pay NING direct. thanks Karelle


Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

Read Before You…


Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…


Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.



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Latest Activity

Olga replied to Oliviane's discussion Natural superfood for small appetite?
"Hi Oliviane! Please check out the Facebook group "Home-based feeding tube weaning" for an active community. This site is a tremendous resource and was very very active a few years ago, but now has gone quiet. Great stuff in the…"
Sep 26
Oliviane replied to Pragathi Vasireddy's discussion Losing weight in Tube weaning
"Hi Pragathi I also have an issue with my daughter who doesn't drink enough, even water. I realised she loves drinking the water in the tub when she's having a bath, so now I give her warm water and she drinks better. Did you try to change…"
Sep 24
Oliviane posted a discussion

Natural superfood for small appetite?

Hi everyoneI'm glad to join the community as I didn't know where to share, ask and learn about g-tube weaning..We started to wean our 1 year old daughter about 1 week ago. She was tube fed because of anorexia but things suddenly seem to get better!She's both breast and bottle fed and eats solids since 10 days (before she just used to pick up and eat tiny pieces of food) but everything in small quantities. I'm wondering what kind of natural and animal cruelty-free food or supplements i can give…See More
Sep 24
Profile IconAlicia , Joy, Kara Orsini and 5 more joined Tube Fed Kids - Deserve to Eat
Sep 24
Pragathi Vasireddy posted a discussion

Losing weight in Tube weaning

Hi Everyone,My daughter is 2 and 1/2 year old, I am trying to wean her off from almost 6 months. But there is not much progress and she is losing weight, so doctors are asking to stop all the efforts until she put on some weight.Right now she is getting 3 feedings, with each one of 8 oz, blenderized diet, one at 8:00 AM, second one at 12:00PM and the third one at 7:00 PM. She goes to daycare and eats one or 2 bites with peers at lunch time. And I try to offer dinner at 6:00 PM, she takes one or…See More
Sep 18
Pragathi Vasireddy replied to Carrie Dolwick's discussion Green output from g-tube- is this normal????
"I had this issue with my daughter too, every night she used to have the same amount vented from G Port. But on the day she has been switched to Blenderized diet from Formula, not even one drop in the venting bag. I was so surprised with…"
Sep 18
Lorraine updated their profile
Sep 13
Profile IconHilda and Lorraine joined Tube Fed Kids - Deserve to Eat
Sep 13
Profile IconCharlee, Keneisha, Shelly L McCarthy and 16 more joined Tube Fed Kids - Deserve to Eat
Sep 12
Eva Kerschischnik posted a discussion

Mediathek - NoTube

Maybe you would like to have a look at some of our videos - enjoy, best regards, Eva More
Sep 10
Olga replied to Jen d's discussion Signs of readiness for g-tube wean in 1-year-old?
"One other note re. your SLP's concerns: SLP training is heavily, if not exclusively, based on oral-motor skills and skill development. This is why you will see programs devised to get a child up to "age-appropriate" skills. However, I…"
Sep 7
Jen d replied to Jen d's discussion Signs of readiness for g-tube wean in 1-year-old?
"Thanks very much Olga!  Very useful info and guidance, and good to know my feelings line up with your experience!  Thanks as well for telling me about the facebook group - you'll see my request.   Jen"
Sep 7

Blog Posts

Weaning advice please!

Posted by VeLynn Tapia on April 28, 2015 at 8:44am 7 Comments

I just posted this question on the Homebased Tube Weaning group page: We have been weaning our 11 month old for 9 days now. The first 5 days we reduced his feeds by 10% to get down to 50%. We stayed there for a day and then stopped all tube feeds on day 7. He was getting 30 oz before, and on day 7 he ate 11.5 oz. Day 8 he ate 12 oz. Some of this was dream feeds. But I'm afraid to dream feed him too much at this point because I want him to learn to eat when he is hungry. Once he seems to be… Continue

Tube weaning program

Posted by Ashley on April 23, 2015 at 10:18am 4 Comments

Has anyone completed spectrums program successfully? My daughter starts next month!

No Aspirating!!!!

Posted by VeLynn Tapia on April 18, 2015 at 9:13am 12 Comments

We just went back for a swallow study a few days ago and Donovan didn't aspirate anything!! He is cleared to eat anything orally. He will take purees by mouth a little if he is very hungry and will take a little from his bottle if he is very hungry as well- maybe 1/2 and ounce. Is is now in the 15th percentile weight wise, but our doctor wants to see him stay there for awhile before we wean completely. He is also refering us to the feeding team at the Children's hospital here (Riley-… Continue


Posted by Colleen Anderson on March 28, 2015 at 4:34am 1 Comment

My son is just about 8 months old.  He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in.   He takes about 40-50% by mouth and his vomiting has decreased significantly.  We were on both zantac and prilosec  but are down to prilosec only.  I don't feel that his pediatrician really knows what to tell us.

The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can…



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