Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Tube Weaning Heart Baby

Started by Amber Bowie in Tube Weaning. Last reply by Amber Bowie Jul 23. 5 Replies

Child with reflux refuses to eat

Started by Aleksandra Paluhina in GRAZ FAQ. Last reply by Aleksandra Paluhina Jun 13. 3 Replies

First week of weaning

Started by Allison in Tube Weaning. Last reply by Olga Jun 11. 8 Replies

Free skype or phone call - NoTube

Started by Eva Kerschischnik in Tube Weaning May 21. 0 Replies

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Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Shruti posted a discussion

Need help or suggestions weaning twins with NG tubes.

Hi,My name is Shruti Patel and I am a mother of twin boys who just turned one this week.My twins were born at 26 weeks in July2014 and were in the NICU for 2.5 months.They do not have any other medical issue other than the feeding tubes.They have NG tubes.When they were discharged from the hospital(sept), they were drinking milk via baby bottle perfectly.They both had reflux which we were unaware of. They threw up but none of the specialist or pediatrician was concerned. So we were not…See More
22 hours ago
Profile IconYvonne, Danielle Hartmann, Catherine and 21 more joined Tube Fed Kids - Deserve to Eat
22 hours ago
Amber Bowie replied to Amber Bowie's discussion Tube Weaning Heart Baby
"I am going to join the group! We went to her feeding appointment today and I was surprised that no one mentioned the g tube. We are going to try to skip the suck and swallow thing and go straight to sippy cup and spoon feeding. The plan is to get…"
Jul 23
Olga replied to Amber Bowie's discussion Tube Weaning Heart Baby
"Amber, you can also join the FB group "Home-Based Feeding Tube Weaning." I am one of the admins, and will be able to send you some weaning reference documents. I would try a wean before going for the g-tube. Her discomfort might also be…"
Jul 23
Amber Bowie replied to Amber Bowie's discussion Tube Weaning Heart Baby
"Thank you Molly. We are set to see the feeding time for the first time on Wednesday. I have tried baby food, just dips in her paci and she spits it out. I thought about going longer in between feeds to see if she'd be hungry. She doesn't…"
Jul 21
mollyfm replied to Amber Bowie's discussion Tube Weaning Heart Baby
"Hi Amber! I have a heart baby who went through a lot of feeding issues, home from NICU with NG and got a G tube at 4 months old but then we weaned to solids and milk at 8 months.  Olga is really the mom-expert on this site and I whole-heartedly…"
Jul 21
Keeley joined Karelle's group
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Graz Tube Weaning Program

A forum for members who have been though the Tube Weaning Program in Graz, Austria - to share their knowledge and experiences with other members who wish to know about going to Graz and the weaning, or who are weaning at home using the Graz Model.
Jul 19
Profile IconPrabha, Tiffany , Karen and 1 more joined Tube Fed Kids - Deserve to Eat
Jul 8
Karelle posted a status
"If you are close to Seattle or Hollywood in LA I would love to meet you. Please private message me. or connect on fb."
Jul 7
Karelle posted a status
"Hello. Spencer and I are arriving in America this Saturday. We will be in Seattle and would LOVE to meet anyone part of this page."
Jul 7
Olga replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Just added you!"
Jul 4
David Borden replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"I just sent a join request.  I would be happy to share our journey!"
Jul 4

Blog Posts

Weaning advice please!

Posted by VeLynn Tapia on April 28, 2015 at 8:44am 7 Comments

I just posted this question on the Homebased Tube Weaning group page: We have been weaning our 11 month old for 9 days now. The first 5 days we reduced his feeds by 10% to get down to 50%. We stayed there for a day and then stopped all tube feeds on day 7. He was getting 30 oz before, and on day 7 he ate 11.5 oz. Day 8 he ate 12 oz. Some of this was dream feeds. But I'm afraid to dream feed him too much at this point because I want him to learn to eat when he is hungry. Once he seems to be… Continue

Tube weaning program

Posted by Ashley on April 23, 2015 at 10:18am 4 Comments

Has anyone completed spectrums program successfully? My daughter starts next month!

No Aspirating!!!!

Posted by VeLynn Tapia on April 18, 2015 at 9:13am 12 Comments

We just went back for a swallow study a few days ago and Donovan didn't aspirate anything!! He is cleared to eat anything orally. He will take purees by mouth a little if he is very hungry and will take a little from his bottle if he is very hungry as well- maybe 1/2 and ounce. Is is now in the 15th percentile weight wise, but our doctor wants to see him stay there for awhile before we wean completely. He is also refering us to the feeding team at the Children's hospital here (Riley-… Continue

Dutch

Posted by Colleen Anderson on March 28, 2015 at 4:34am 1 Comment

My son is just about 8 months old.  He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in.   He takes about 40-50% by mouth and his vomiting has decreased significantly.  We were on both zantac and prilosec  but are down to prilosec only.  I don't feel that his pediatrician really knows what to tell us.

The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can…

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