Connecting Parents of Children with Tube Feeding Issues
The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD.
If you are willing and able to contribute, please deposit money into paypal account email@example.com. Unfortunately you can not pay NING direct. thanks Karelle
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
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The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…Continue
My Name is Marguerite Dunitz-Scheer, together with my husband Peter Scheer, I am the founder of the "Graz Model of Tube Weaning" which we established and implemented at the University Children´s Hospital Graz, Austria since 1985. Since 2017 we have both retired from the University Children's Hospital and continue our work at NoTube, a non-profit organization founded in 2009.
No one else has been…
Hi, I am new here. My son just turned 2 . He has William syndrome. He had sensory issues but we were working with an occupational therapist to work on feeding issues. At 17 months old he had to have an emergency hear surgery. He had a lot of complications from the surgery and he ended up on on heart lung machine called ECHMO fir a week. His heart was still bad so they started him on a heart failure medication. He was in hospital for 3 months and we came home with an no tube. He takes bottle…Continue
I would like to share our story and hear any similar situations/ experiences. We are very keen to do an intensive wean program in Adelaide, Australia as soon as possible for our daughter. Elka was born at 25+6 weeks at 486g with Severe IUGR (I had pre-eclampsia). She is now almost 7 months corrected. Her weight is under the 3rd percentile but she is tracking along her own growth curve. Currently weighs only 5.38kg. She was discharged from hospital on…Continue
I wanted to come back and post about my son's journey to give hope to those in this forum. I am so thankful to have found this forum when I did and am grateful for all the people who gave us advice/input. Thanks also to Markus for the Skype session that we had back then, which helped us in our time of need.
My son was born with CHARGE Syndrome and was on a G-tube (had…Continue