Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Should he be hungrey

Started by Heath pittiglio in Tube Weaning. Last reply by Kerry 2 hours ago. 4 Replies

My skinny girl

Started by Jerome Kaidor in Tube Weaning. Last reply by Kerry 16 hours ago. 5 Replies

Sippycup cup or bottle

Started by Heath pittiglio in General Discussions on Monday. 0 Replies

Neocate

Started by Heath pittiglio in Tube Weaning. Last reply by Heath pittiglio on Monday. 2 Replies

New clinical study about Netcoaching from NoTube

Started by Eva Kerschischnik in Tube Weaning. Last reply by Eva Kerschischnik on Sunday. 2 Replies

Can I wean straight to solids?

Started by Christine S. in Tube Weaning. Last reply by Christine S. Jul 22. 19 Replies

Sucking a dummy

Started by Heath pittiglio in Tube Weaning. Last reply by Kay Korsg Jul 21. 2 Replies

 

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Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Olga left a comment for mamamoo
"hey mamamoo (reminds me of mama moomin, which is my nickname at home :-) you can try the facebook group Tube Weaning UK -- Lesley is one of the admins and knows of programs in the UK that can help you. My son was without any oral intake for 14…"
5 minutes ago
Olga replied to Christine S.'s discussion 4.5 months old and moving to a Gtube
"Christine -- Why are they saying 24 months?!? Two years before she "starts" to wean??? What possible rationale is there for that time scale? I have heard of kids "weaning" around age 2, but imho that's not because of any…"
7 minutes ago
Olga replied to A L's discussion Trying to wean a 7-month-old baby
"Don't worry about the sweet food -- babies love sweet (breastmilk is sweet, as are most formulas), and it doesn't at all mean that she will just like sweet later on. As long as she's getting the nutritional balance she needs once she…"
12 minutes ago
mamamoo left a comment for Leiah
"Hey leiah ! I read yr comment and wondered if I cud ask a few questions really. My LB is 4 months on saturday and has been ob a NG tube since 6 weeks old. Originally they thought that he stopped feeding because of acid reflux and now they know he…"
23 minutes ago
Christine S. replied to Christine S.'s discussion 4.5 months old and moving to a Gtube
"super cutie! Thanks for sharing it. Have fun tomorrow. "
33 minutes ago
Christine S. replied to Christine S.'s discussion 4.5 months old and moving to a Gtube
"Thank you mollyfm,  It is good to hear you had a positive experience with it. Is your little one still on a gtube. The feeding therapist gave us a time estimate of about 24 months before she more than likely will start to wean. That feels very…"
34 minutes ago
A L replied to A L's discussion Trying to wean a 7-month-old baby
"Before my daughter surpraglottoplasty, she needed o2 24/7, after the surgery, she only needs it when she sleep.  She is going to do a sleep study in mid Aug, hopefully she passes it and doesn't need o2 at all."
40 minutes ago
A L replied to A L's discussion Trying to wean a 7-month-old baby
"Hi Kerry, Thanks for your post. So when did your daughter start eating by mouth when you start to wean her?  How many days it took for her to start eating a significant amount."
42 minutes ago
A L replied to A L's discussion Trying to wean a 7-month-old baby
"Hi Olga, Thanks for your reply. 2) Starting to eat: My daughter did a swallow study back in June, we tried to feed her solid (rice cereal) during the test but she didn't know what to do with it.  It just sat in her mouth.  They…"
46 minutes ago
Olga replied to Sal's discussion weaning a 13month old from ng tube
"Hi Sal --  Yeah, the birthday turning point is ridiculous, imho. ANd I remember the professor in Graz telling me that of kids who vomit, 90% (!) are overfed, often by up to 30% of calories. It sounds like this is what you're seeing, along…"
1 hour ago
Sal replied to Sal's discussion weaning a 13month old from ng tube
"Hi Olga,Thank you for your reply. I really appreciate your time and support.He was getting 180-200ml per feed .We gave him 5 feeds/day with 22 cal formula and we added rice cereal( instead of thicken up) 6 scoops/day as he vomited .I guess it was…"
1 hour ago
Sal replied to Sal's discussion weaning a 13month old from ng tube
"Hi Kerry,Thank you for the support. As I read your reply , it really helps me with my determination. Thanks a lot.When my son was 2 months old, he failed his swallow test with thin liquids and did ok with nectar consistency and since then he was…"
1 hour ago

Blog Posts

A poem

Posted by Jerome Kaidor on July 31, 2014 at 1:29am 0 Comments

Here's a poem that wandered past my eyeballs the other day:





You can't make me eat that,

it's slimy and gooey

and icky and yucky

and greasy and gluey.

It looks like you made it

from maggots and mud,

some chopped hippopotamus,

bug heads and blood.



I hate it, I hate it,

I hate it to bits!

Just thinking about it

is giving me fits.

One taste and I'm certain

I'll instantly die...

You can't make me eat that,

so don't…

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Update on tubies

Posted by Heather on July 9, 2014 at 7:00pm 1 Comment

Great update on my kiddo's. My sons tube is out. We had to be really careful with weaning off of the NG tube because he would have hypoglycemia if he did not get enough calories. We took away 1/2 an ounce each time for 4 feelings a day and would not decrease again until he was taking what we took away. We also increased his bedtime feeding so that his stomach expected more food in it and it helped increase his hunger at other feedings. He always eats more in the evening and during the night so… Continue

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed.…

Posted by chelsea on July 7, 2014 at 12:42am 7 Comments

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed. He's almost 6 months now and He recently passed his swallow study so we begun giving him baby food. Ever since then his sippy cup drinking ( he hates bottles) has really picked up. My problem is that he usually gets 5 oz through his feeding tube. I decided to only let him get food orally except… Continue

Just checking in!

Posted by Jane Marie T. on July 6, 2014 at 1:42pm 3 Comments

Just checking in! Our little Becky is four years old now and it's been more than three years since her wean.  It was such a hard decision, and we had spent more than four months looking into it, and in the end we took the plunge and did a wean at home from her ng.

She had already been taking part oral, and we realized part way into her wean that we had to help her out by squeezing her bottle for her.  We did that for a long time--having to squeeze it to help her get enough…

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