Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Time to wean 7 month old?

Started by Sammie in Tube Weaning. Last reply by Olga on Saturday. 13 Replies

Second attempt of wean

Started by Heath pittiglio in Tube Weaning. Last reply by Christine S. on Wednesday. 2 Replies

NG-Tube Wean for 5-month Old

Started by Ernest in Tube Weaning. Last reply by Christine S. on Wednesday. 14 Replies

NG Tube Weaning - 16 month old

Started by Cindy in Tube Weaning. Last reply by Jennifer Berry Oct 11. 15 Replies

NoTube - Sweden on Facebook

Started by Eva Kerschischnik in Tube Weaning Sep 29. 0 Replies

Second attempt of wean

Started by Heath pittiglio in Tube Weaning. Last reply by Olga Sep 27. 1 Reply

Advice on hunger based weaning

Started by LiamsMom in Tube Weaning. Last reply by LiamsMom Sep 27. 10 Replies

 

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Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

MP replied to MP's discussion Need help for tube weaning our 7 months old boy in the group UK parents
"We are pretty sure it's texture and not taste, so will try thickening option, thanks a lot Olga."
5 hours ago
Olga replied to MP's discussion Need help for tube weaning our 7 months old boy in the group UK parents
"Wow, look at all that progress!So I would try to find out if he's objecting to the TASTE of the milk, or to the TEXTURE. If it's the taste, you can mix milk with his purees (which would also make it thicker) If it's the texture (the…"
7 hours ago
MP replied to MP's discussion Need help for tube weaning our 7 months old boy in the group UK parents
"Hello all, i thought to update where we are now after 3 weeks of weaning at home. we reduced the tube intake by 30% from day 1, and Shivam was obviously hungry the next morning. We offered him milk through bottle that was not accepted (we did not…"
13 hours ago
Kristy replied to Kristy's discussion G tube weening a 2 year old starting monday
"He's willing to put stuff in his mouth he just spits it out . He'll drink small sips from a water sippy cup. Puree he's not fond of . He has Speach and ot who are wonderful they support everything and don't feed him ! They got…"
yesterday
Olga replied to Kristy's discussion G tube weening a 2 year old starting monday
"Hi Kristy -- sounds like he's almost 3 by now, yes? (Looking back at your posts from November 2013) Where are you in terms of oral intake, willingness to taste, medical support? Here's one great resource, www.thecrunchyandthesmooth.com,…"
yesterday
Kristy posted a discussion

G tube weening a 2 year old starting monday

Does anyone have any tips or tricks or ween scheduled they'd be willing to share
yesterday
Olga posted a discussion

This "therapy" is common, and it breaks my heart

Heartbreaking article about tube-weaning "therapy" at Children's Hospital of Orange County: http://www.ocregister.com/articles/gretchen-607811-joshua-eat.htmlThis illustrates the prevailing attitude and approach of leading intensive-weaning centers in the US (CHOC, Kennedy Krieger, Baylor, St. Mary's, on and on). When you see "behavioral" mentioned in a program description, this is what they mean: getting a child…See More
Saturday
Olga replied to Sammie's discussion Time to wean 7 month old?
"yay!!!! SO delighted for you!!!! And if her intake fluctuates, don't stress! Only tube-fed kids eat the identical amount each day. 77% or 95% or 83% or 101% -- as long as she is HAPPY, and eating, and growing over TIME (key) then you're…"
Saturday
Sammie replied to Sammie's discussion Time to wean 7 month old?
"Peyton ate 77% of her goal amount in milk out of the bottle today!! (This doesn't even count the purées!!) I am seeing her become a little more confident in bottle eating and she was a very happy girl today. It seems even she is relieved…"
Saturday
Olga commented on Jessica Esperanza's blog post Sierra Rose and her NG tube
"Ah, ok, that makes sense with the nipple. Here's my completely biased, "voice on the internet" two cents: - If you want to continue nursing for the joy/comfort, know that I would cheer you on from the sidelines here!!! I nursed my…"
Saturday
Olga replied to Sammie's discussion Time to wean 7 month old?
"Cool! We did real food through my son's g-tube once he was 18 months, just started feeding him what he would have been eating orally. Made an incredible difference for him, and for all of us.  How did today go? Did she settle down more to…"
Saturday
Sammie replied to Sammie's discussion Time to wean 7 month old?
"Thank you! All her purées are raw and she loves avacodo, banana, and sweet potatoes...all high on calories. We will be sure to use those more than the other lower calorie foods. Great info!"
Friday

Blog Posts

Sierra Rose and her NG tube

Posted by Jessica Esperanza on October 17, 2014 at 5:54pm 3 Comments

Sierra spent her first three weeks of life in the NICU.  She had a body cooling procedure where they dropped her body temperature to try to minimize the brain damage she experience due to a lack of oxygen during birth.  She was on morphine for the pain and phenobarbital because she had a seizure her first day in response to the trauma of birth.  During most of her stay she was intubated and fed through a tube.  Eventually all medical intervention was removed besides the ng feeding tube and…

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Duocal

Posted by Nancy Gopstein on October 7, 2014 at 5:16am 1 Comment

Hi, we weaned my son from his g-tube last Dec.  I have a bunch of cans of Duocal, all still good (exp dates of 2015 and 2016).  I'm not sure if I'm allowed to offer the Duocal to anyone on this site or not???

Heaths wean

Posted by Heath pittiglio on September 28, 2014 at 10:09pm 0 Comments

Day 2 starting to drink in a sence water, had some tastes if biscuit veg puree, pear puree. Very clingy loves his mummy. Took a while to get to sleep tonight. Tomorrow a new day.
Heath is doin a partial wean leaving the tube in having 450 mls per 24 hr 90 @ afternoon tea, 180 mls after dinner, then about 9pm. Hopefully he starts to eat more n more. Not sure what to do Re neocate as he does nit like it. Decided I will get him drinking water first.

warning someone called Michell Adams is trying to con people

Posted by kim morrissey on September 16, 2014 at 10:51am 2 Comments

I receaved a e mail about 5days ago from a woman called Michell Adams informing me she had something vital to tell me about my family so as a concerned mother i replyed asking what she had to say i receaved another e mail today from her telling me she was a banker from guarna and that she was the account manager of a account of a very large some of money and that the account holder was dead and had no next of kin and she wanted to split the money with me before her bank manager found out he was… Continue

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