Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Day 2 of GRAZ NETcoaching

Started by Katie Bird in Tube Weaning 12 hours ago. 0 Replies

In love with this cup

Started by DM in Tube Weaning. Last reply by DM 13 hours ago. 3 Replies

Anyone gone against doctors orders?

Started by Becky Gourlay in Tube Weaning. Last reply by Olga yesterday. 14 Replies

Need Advise Urgently

Started by Kim Cameron in Tube Weaning. Last reply by Melissa Kern yesterday. 3 Replies

Chiropractor?

Started by Heather Vandike in Alternative Therapies and Medications. Last reply by christine beyton yesterday. 1 Reply

Eating yes, drinking no...

Started by Becky Gourlay in General Discussions. Last reply by Patty LaFratta yesterday. 3 Replies

Question about intensive feeding clinic

Started by Heather Vandike in General Discussions. Last reply by Nicole Hahn on Thursday. 9 Replies

Feeding Suggestions?

Started by Manuella Brown in Tube Weaning. Last reply by Lilly Almeida on Thursday. 11 Replies

can i have the mail address for los altos feeding clinic?

Started by Amarpreet Kaur in Tube Weaning. Last reply by Amarpreet Kaur on Thursday. 7 Replies

 

Notes

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Olga left a comment for Scott Roth
"HAPPY BIRTHDAY, MYLA!!! it's a super special one for your parents, too. "
3 hours ago
Patty LaFratta replied to Pendo Chitde's discussion Six-month-old NJ tube weaner is gaining weight! BUT ...
"I'm so glad it helped, Pendo!  Keep up your good work!!   Patty"
7 hours ago
Pendo Chitde replied to Pendo Chitde's discussion Six-month-old NJ tube weaner is gaining weight! BUT ...
"Hi Sonia, thank you for your reply! This is definitely helpful - I think your situation is similar (i.e. I don't FEEL uptight when feeding her, but I'm sure I really am). Your social tips are very good ones - I have tended to stay away…"
7 hours ago
Pendo Chitde replied to Pendo Chitde's discussion Six-month-old NJ tube weaner is gaining weight! BUT ...
"Thank you again, Patty! Very helpful ... I've tried your some of your tips, and everything has been pretty good so far! No vomiting - I think the volume I was giving may have been too great (in my quest for trying to get her to gain weight). I…"
7 hours ago
Sonia Altizer replied to Pendo Chitde's discussion Six-month-old NJ tube weaner is gaining weight! BUT ...
"Not sure if this is helpful, but - we had some similar issues with our son - he would eat better for dad, our babysitter or my parents than for me.  He was between 8-12 mos and no longer taking a bottle (refused all bottles around 5-6 mos of…"
7 hours ago
Katie Bird posted a discussion

Day 2 of GRAZ NETcoaching

As the title says we are in Day 2 of our wean. George decided to pull his tube on Day 1 and we are now at about 36 hours tube free. He is doing so well, taking a mixture of pureed food and milk (only at night but who cares!) Anyone else done the Graz program? I met with their Professor in London the other day and she said she could have George tube free by the end of May :)See More
12 hours ago
Nicole Hahn replied to DM's discussion In love with this cup
"Thanks for the link!  Still trying to fin the elusive "perfect sippy cup".  My daughter will take sips if we hold the cup, but it's hard to gauge how much she is getting and I think sometimes her reluctance to drink is…"
16 hours ago
Olga replied to Scott Roth's discussion We're up to our neck...we just need to take the final plunge.
"oh scott. what a birthday it will be tomorrow.  (hugs)"
yesterday
Olga replied to Becky Gourlay's discussion Anyone gone against doctors orders?
"keep in mind that you need a safe swallow, documented, before they'll take you on.  sorry to hear about the aspiration pneumonia -- ugh!!!  they estimated it would take zandy three years to recover from the extensive damage caused by…"
yesterday
RJ replied to Scott Roth's discussion We're up to our neck...we just need to take the final plunge.
"we were  in the same spot 7 months ago...just remove the tube for 10 days ..she will eat and drink and gain weight...we got there and so can you ...just give it a try:) "
yesterday
Becky Gourlay replied to Becky Gourlay's discussion Anyone gone against doctors orders?
"Its certainly worth looking into thanks :) so nice to hear success stories"
yesterday
Becky Gourlay replied to Becky Gourlay's discussion Anyone gone against doctors orders?
"You're very right they are important skills. Maya is on melatonin to sleep too which really annoys me but I've been told not to take her off it while she is having unexplained apneas - which were identified two months ago and only monday…"
yesterday

Blog Posts

Donation of Simply Thick and Elecare Unflavored & Vanilla

Posted by Lilly Almeida on May 17, 2012 at 4:13am 0 Comments

Hi Guys,

 

I would like to donate some Simply Thick and Elecare that I have at home but, I don't know how to do that. Does anyone needs it in here? I could put them on ebay with a symbolic fee and accept your bit or something like that...you will just need to pay for shipping fees inside the US would be better.

Any other ideas?? Tks, Lilly.

 

A Little Success!

Posted by sarah buckbee on May 16, 2012 at 12:24pm 2 Comments

On a whim, I decided to try rice cereal again today. I prepared about 1/2 Tbsp cereal and prepared myself for a gagging-choking episode to follow the first spoonful.  Allison only gagged once.  Woo hoo!  Granted, I gave her tiny spoon "half-fulls" and kept her very distracted with silly sounds, but I call that success.   Breastfeeding is going well--about 1 1/2 oz all day--we have to vent before tube feeds to relieve gas, so I monitor breastfeeding intake while I am relieving gas.  It feels…

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sad little ancecdote

Posted by Olga on May 15, 2012 at 3:42pm 0 Comments

i just got back from an all-day conference on healthcare, specifically, "communicating with patients about medical errors"

[incidentally: what came up: if we don't tell the hospital about the mistakes they made, about how the care fell far short of "good", about our suffering, then they can't change. so if you can, if you feel like it, let them know where they screwed up!]

i spoke very briefly as a patient advocate. during break, a woman came up to me and said her son…

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The sad story with a happy ending..

Posted by bellsmama on May 12, 2012 at 11:01am 5 Comments

  Bella is a happy little girl. She's 2 (almost 3), and she has defied statistics that said she'd be either dead or deformed and/or severely delayed in her development. She doesn't care what they said. She walks, talks, and plays like a regular kid her age. She draws (really, really well for her age!) and can identify 98% of the alphabet by sight in or out of order. She can count to 7 and knows numbers up to 10 by sight, and she is fond of the color blue. She has recently started singing…

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