Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Tube Weaning Heart Baby

Started by Amber Bowie in Tube Weaning. Last reply by Olga on Tuesday. 1 Reply

Child with reflux refuses to eat

Started by Aleksandra Paluhina in GRAZ FAQ. Last reply by Aleksandra Paluhina Jun 13. 3 Replies

First week of weaning

Started by Allison in Tube Weaning. Last reply by Olga Jun 11. 8 Replies

Free skype or phone call - NoTube

Started by Eva Kerschischnik in Tube Weaning May 21. 0 Replies

advice.to tibe.weaning

Started by missymoo in Tube Weaning. Last reply by missymoo May 18. 2 Replies

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Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Olga replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Just added you!"
yesterday
David Borden replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"I just sent a join request.  I would be happy to share our journey!"
yesterday
Olga replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Can't wait to read it! There are also a lot of families on this very friendly FB group called "Home-based Feeding Tube Weaning" who I know would love to follow your journey.  Cheering you on! I haven't met Heidi, but I hear…"
yesterday
David Borden replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"We will try to post a lot of details!    We start hunger induction today and begin intensive on Monday!   On the edge of our seat right now with anxiety but hanging in there!  Thanks for all the support!"
Wednesday
Olga replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Great news!!! So excited for you! Please let me know how it goes!"
Tuesday
Olga replied to Amber Bowie's discussion Tube Weaning Heart Baby
"HI Amber! Just wanted to let you know I saw your post, and will reply when I can! What I have found in oer five years of talking to families who are weaning, is that way too many therapists are not experienced in feeding and/or don't eel they…"
Tuesday
mollyfm replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Hi David, we too did our wean through Spectrum with Heidi and Jeni when our son was 8 months.  It was incredibly stressful but also so  happy as it was successful and he's never looked back! Please feel free to reach out for support.…"
Tuesday
Sanam replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"Hello David, great news!!! Happy to read that things are progressing well. We did our wean through Spectrum too, again if you need support and feedbanck during this period, I will be happy to help, do not hesitate to reach to me. All my prayers with…"
Tuesday
David Borden replied to David Borden's discussion Meet Eli, 16 Months, Tube fed since 7 months. No longer eats. Been a long road.
"We have almost finished fundraising for Eli.  www.youcaring.com/helpelieat I am incredibly excited to say that Heidi from Spectrum Pediatrics is going to be performing the tube wean out of our home starting on July 6th.  We begin the…"
Monday
David Borden and Sanam are now friends
Monday
Amber Bowie posted a discussion

Tube Weaning Heart Baby

My now 6 month old baby girl was born with a heart defect.  She was given the NG tube around 2 months of age due to failure to thrive and issues with weight gain.  Her name is Khloe.  Khloe took the bottle from birth.  No issues with sucking, her only issue was getting extremely tired and was unable to finish 2 oz of formula and/or breast milk due to stress on her heart.Khloe's cardiologist had the ng tube placed around 2 1/2 months.  We were admitted to the cardiac intensive care unit because…See More
Monday
Claire Koch joined Carina's group
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UK parents

A group to help us connect any nearby fellow tube feeders!
Monday

Blog Posts

Weaning advice please!

Posted by VeLynn Tapia on April 28, 2015 at 8:44am 7 Comments

I just posted this question on the Homebased Tube Weaning group page: We have been weaning our 11 month old for 9 days now. The first 5 days we reduced his feeds by 10% to get down to 50%. We stayed there for a day and then stopped all tube feeds on day 7. He was getting 30 oz before, and on day 7 he ate 11.5 oz. Day 8 he ate 12 oz. Some of this was dream feeds. But I'm afraid to dream feed him too much at this point because I want him to learn to eat when he is hungry. Once he seems to be… Continue

Tube weaning program

Posted by Ashley on April 23, 2015 at 10:18am 4 Comments

Has anyone completed spectrums program successfully? My daughter starts next month!

No Aspirating!!!!

Posted by VeLynn Tapia on April 18, 2015 at 9:13am 12 Comments

We just went back for a swallow study a few days ago and Donovan didn't aspirate anything!! He is cleared to eat anything orally. He will take purees by mouth a little if he is very hungry and will take a little from his bottle if he is very hungry as well- maybe 1/2 and ounce. Is is now in the 15th percentile weight wise, but our doctor wants to see him stay there for awhile before we wean completely. He is also refering us to the feeding team at the Children's hospital here (Riley-… Continue

Dutch

Posted by Colleen Anderson on March 28, 2015 at 4:34am 1 Comment

My son is just about 8 months old.  He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in.   He takes about 40-50% by mouth and his vomiting has decreased significantly.  We were on both zantac and prilosec  but are down to prilosec only.  I don't feel that his pediatrician really knows what to tell us.

The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can…

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