Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Kaiser Refuses

Started by Jerome Kaidor in Tube Weaning. Last reply by Olga 21 hours ago. 5 Replies

Neocate or water

Started by Heath pittiglio in Tube Weaning. Last reply by Olga on Thursday. 5 Replies

Kaiser Politics

Started by Jerome Kaidor in Tube Weaning. Last reply by Markus Wilken Sep 14. 20 Replies

NG-Tube Wean for 5-month Old

Started by Ernest in Tube Weaning. Last reply by Kay Korsg Sep 12. 6 Replies

Ng tube wean

Started by Sophie McCook in Tube Weaning. Last reply by shaermin Sep 12. 3 Replies

Autism and sensory issues

Started by Emma Ruth Herbert in General Discussions. Last reply by Olga Sep 11. 1 Reply

Advice on hunger based weaning

Started by LiamsMom in Tube Weaning. Last reply by LiamsMom Sep 11. 7 Replies

Tentative Reduction

Started by Jerome Kaidor in Tube Weaning. Last reply by Olga Sep 6. 12 Replies

Weaning and stressed

Started by Sebastian K in Tube Weaning Sep 6. 0 Replies

GJ tube

Started by Kerry Dolan in Tube Weaning. Last reply by Y. Mizel Sep 5. 7 Replies

 

Notes

Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Olga replied to Jerome Kaidor's discussion Kaiser Refuses
"It's true that it's not all about the money -- but in a pure dollars to dollars comparison with the weaning program, I'm afraid they just look at the money. These are the companies who determine how many blood glucose test strips they…"
21 hours ago
Jerome Kaidor replied to Jerome Kaidor's discussion Kaiser Refuses
"Of course, just because we don't visit the ER today, doesn't mean we won't tomorrow... Surely having a G-tube increases the *probability* of winding up in there....."
23 hours ago
Jerome Kaidor replied to Jerome Kaidor's discussion Kaiser Refuses
"An interesting article.  Good point about avoiding the sob story and sticking to the money.  Unfortunately, I don't think I can make a money case for this referral.  Keeping Ilana on the tube is just not costing Kaiser much…"
yesterday
Olga replied to Ana Morao's discussion Tube weaning 9.5 months baby - takes no milk!
"GREAT!!!! I would really really recommend to give her TIME to settle into her eating patterns to NOT expect that she will eat "100%" of what some computer said is the number she needs. Whether she's eating enough is something you will…"
yesterday
Ana Morao replied to Ana Morao's discussion Tube weaning 9.5 months baby - takes no milk!
"Inês pulled out her NG tube this morning and we decided to experience the weekend without tube feedings! I went through the documents you shared - and a few others. Yes, I'm obsessed. in terms of proteins and fats she is fine …"
yesterday
Olga replied to Jerome Kaidor's discussion Kaiser Refuses
"Jerry -- attached is a great article on appealing insurance denials. Might help with some thought organizing: "
Friday
Olga replied to Jerome Kaidor's discussion Kaiser Refuses
"Do the therapist, dietitian and GI even *have* a plan for "appropriate timing to reduce gastrostomy tube calories with a goal  of appetite facilitation"?  (crickets) Does the treatment plan they reference even exist and have…"
Friday
Jerome Kaidor posted a discussion

Kaiser Refuses

We requested a referral to the Choc intensive feeding program.  Here is Kaiser's response:------------------- snip -----------------Your request has been reviewed and denied by the Kaiser Permanente Regional Center Review Committee as not medically indicated for Ilana Kaidor at this time based on his current condition., Our experts indicate that Ilana's feeding schedule is still ongoing modification, between overnight and bolus feeds and vomiting is only recently resolved . It would be…See More
Friday
Olga replied to Heath pittiglio's discussion Neocate or water
" That's $8 right there.... "
Thursday
LiamsMom replied to Heath pittiglio's discussion Neocate or water
"Sounds like something we should try. The deductible for the year is met so we may as well get some through insurance :) Thanks!"
Thursday
Olga replied to Heath pittiglio's discussion Neocate or water
"We got the "tropical" flavor (in the orange box): it has the acidity of juice, without "real sugar" sweetness, and a "thin" mouth feel -- it doesn't coat the inside of the mouth like any other formula does.…"
Thursday
LiamsMom replied to Heath pittiglio's discussion Neocate or water
"What does Neocate splash taste like? Is it a milky formula or is it a liquidy juice type thing?"
Thursday

Blog Posts

warning someone called Michell Adams is trying to con people

Posted by kim morrissey on September 16, 2014 at 10:51am 1 Comment

I receaved a e mail about 5days ago from a woman called Michell Adams informing me she had something vital to tell me about my family so as a concerned mother i replyed asking what she had to say i receaved another e mail today from her telling me she was a banker from guarna and that she was the account manager of a account of a very large some of money and that the account holder was dead and had no next of kin and she wanted to split the money with me before her bank manager found out he was… Continue

Article about Feeding Therapy

Posted by Olga on September 2, 2014 at 4:28am 0 Comments

Hi all -- I reposted this on FB, and think it's a really nice description of what to watch out for in feeding therapies, especially any intensive programs: 

http://www.huffingtonpost.com/katja-rowell-md/when-feeding-therapy-becomes-aversion-therapy_b_2951294.html

Key take-aways:

- If it feels wrong to YOU, it's ok to stop therapy

- Good,…

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removal!!

Posted by chelsea on August 8, 2014 at 1:20am 0 Comments

Today Damien's g - tube will be removed! From the bottom of my heart I want to say thanks because it was this site who helped us the most. I didn't have any help from a professional. Everything that was done was either by my instinct or the advice of other mothers. I wish all of your children the best of luck. Hang in there!

A poem

Posted by Jerome Kaidor on July 31, 2014 at 1:29am 0 Comments

Here's a poem that wandered past my eyeballs the other day:





You can't make me eat that,

it's slimy and gooey

and icky and yucky

and greasy and gluey.

It looks like you made it

from maggots and mud,

some chopped hippopotamus,

bug heads and blood.



I hate it, I hate it,

I hate it to bits!

Just thinking about it

is giving me fits.

One taste and I'm certain

I'll instantly die...

You can't make me eat that,

so don't…

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