Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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5 month NG tube wean.

Started by Josie in Tube Weaning. Last reply by Kerry on Saturday. 18 Replies

Trying to wean almost 8 Yr old

Started by Jeannine Militello in Tube Weaning. Last reply by CarylK Mar 26. 1 Reply

How to choose a tube weaning program

Started by Eva Kerschischnik in Tube Weaning. Last reply by Eva Kerschischnik Mar 11. 4 Replies

weaning program choice

Started by Katya in Tube Weaning via Email Coaching. Last reply by Eva Kerschischnik Mar 11. 3 Replies

We are tube free!!

Started by Bri Rogerson in Tube Weaning Success Stories. Last reply by Bri Rogerson Feb 27. 2 Replies

Advertising and Membership Fee

Started by Karelle in General Discussions. Last reply by Eva Kerschischnik Feb 21. 6 Replies

CF Parents

Started by Cheri Parlaman in Syndromes & other Medical Diagnosis. Last reply by Catherine Feb 10. 11 Replies

Help needed with home wean for 3 month old

Started by Bri Rogerson in Tube Weaning. Last reply by Lisa Argentieri Feb 1. 3 Replies

 

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Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Cicily Durr commented on Cicily Durr's blog post our story
"I do think he has a food aversion and texture issue, he nibbles on anything crunchy like chips or bread. Hopefully lifescapes can help, we have our first appt this week! thanks! "
Monday
Cicily Durr posted a status
"All test negative. We got over parainfluenza a month ago and he got a g tube last week. Now he does not vomit which is great."
Monday
RoRaAl posted a discussion

NG to G tube - impact on oral feeding?

I am hoping someone can give me some reassurances.Brief background - my son is currently 100% NG tube fed and we are scheduled for a g tube in a few weeks time. It has taken many months but we seem to finally be making some small progress with oral feeding of solids.I have written on here a few weeks ago when I tried to wean him from NG but it didn't work out.He is v interested in food, likes to self feed, chews, licks but will NOT swallow. His general mood is always really good at these…See More
Monday
Olga replied to Jeannine Militello's discussion 50% tube use and steady weight. Now what? in the group Home Based Tube Weaning
"Wow, that's great! And cheers to her super efforts -- go lovely girl, go!We stayed at 50% via tube until my son was eating around 40% calories orally. We then stopped all tube feeds completely and he just took off. But! He was much younger (20…"
Sunday
Jeannine Militello added a discussion to the group Home Based Tube Weaning
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50% tube use and steady weight. Now what?

My almost 8 yr old is in the middle of trying to wean off her gtube she's had since 3.5 years old. The first week we began we hadn't reduced her tube feeding volume by more than 30% yet She lost a pound. Today being the end of the second week she maintained her weight. No gain or loss. This week We've pretty much been at 50% of the amount she used to get via tube. Her oral eating is still pretty prompted but she's trying so hard to improve the volume she eats.So now what?! Do we stay at 50%…See More
Sunday
Jeannine Militello added a discussion to the group Parents with older children - 4 years plus
Thumbnail

50% tube use and steady. Now what?

My almost 8 yr old is in the middle of trying to wean off her gtube she's had since 3.5 years old. The first week we began we hadn't reduced her tube feeding volume by more than 30% yet She lost a pound. Today being the end of the second week she maintained her weight. No gain or loss. This week We've pretty much been at 50% of the amount she used to get via tube. Her oral eating is still pretty prompted but she's trying so hard to improve the volume she eats.So now what?! Do we stay at 50%…See More
Sunday
Jeannine Militello posted a discussion

Now what? At 50% of tube calories and steady.

My almost 8 yr old is in the middle of trying to wean off her gtube she's had since 3.5 years old. The first week we began we hadn't reduced her tube feeding volume by more than 30% yet She lost a pound. Today being the end of the second week she maintained her weight. No gain or loss. This week We've pretty much been at 50% of the amount she used to get via tube. Her oral eating is still pretty prompted but she's trying so hard to improve the volume she eats.So now what?! Do we stay at 50%…See More
Sunday
Kerry replied to Josie's discussion 5 month NG tube wean.
"Hi josie, Yes i did night feeds right as tube came out, like where you are at. I also started solids (soft/ puree). I know people say u can mix formula in it to get the calories in. However my daughter was on neocate and hated the taste (its beyond…"
Saturday
Olga commented on Colleen Anderson's blog post Dutch
"Colleen, sounds like heis doing great! And yes, your instinct is correct: the NG DOES interfere with swallowing. Our children's hospital therefore says 3-6 months MAX of NG use, to prevent exactly that negative side effect (interference with…"
Friday
Colleen Anderson posted a blog post

Dutch

My son is just about 8 months old.  He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in.   He takes about 40-50% by mouth and his vomiting has decreased significantly.  We were on both zantac and prilosec  but are down to prilosec only.  I don't feel that his pediatrician really knows what to tell us.The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can come out. I…See More
Friday
Profile Iconisabelle, Lily, Colleen Anderson and 2 more joined Tube Fed Kids - Deserve to Eat
Friday
Josie replied to Josie's discussion 5 month NG tube wean.
"Well we are on day 9 of 50% feeds and she pulled her tube out and we aren't going to put it back. So nervous about this. I know I have been accustomed to the tube also so its going to be so different. She has been eating from 20-30 mls and…"
Friday

Blog Posts

Dutch

Posted by Colleen Anderson on March 28, 2015 at 4:34am 1 Comment

My son is just about 8 months old.  He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in.   He takes about 40-50% by mouth and his vomiting has decreased significantly.  We were on both zantac and prilosec  but are down to prilosec only.  I don't feel that his pediatrician really knows what to tell us.

The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can…

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Our story- 6 month old

Posted by VeLynn Tapia on March 23, 2015 at 10:24pm 0 Comments

Our baby, Donovan, was 6 months old and barely 12 lbs. He was born 6 1/2 lbs but spent a few days in NICU because of lung problems. When he was able to breath on his own, we brought him home. However, he had a hard time nursing. I thought he has nipple confusion because he got a pacifier in the NICU. I worked REALLY hard to get him to nurse. He ended up loosing weight- went down to 5lbs 12 oz before I finally bought a bottle to feed him. Suprisingly, the bottle helped him learn to suck a little… Continue

our story

Posted by Cicily Durr on March 7, 2015 at 2:31pm 2 Comments

Hello everyone, My son sam has had his ng tube for 2 months now. He just turned a yr, still not much of an appetite. He gets 4 bolus feeds in a 24 hr period, Drs switched from pump to gravity feeds which he has been vomiting up. He is going to start prilosec. He's never been a big drinker of formula and has always been small, Drs diagnosed him with failure to thrive and put in tube in a Jan, with hospitals stays and rsv, he will not eat baby food anymore only crunches and crackers. I think…

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NG to bottle

Posted by Brittney on March 6, 2015 at 12:58pm 22 Comments

My son is almost 6 months old, has chd and has had NG since he was a month old. We have removed NG in an attempt to reduce reflux. So far it has helped lot, no vomiting today!! He is drinking an once an hour and I feel like the removal of NG has helped greatly.

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