Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

Members

Forum

No plan for NG tube weaning

Started by Kerry in Tube Weaning. Last reply by Sharmeen Aug 1. 1 Reply

Attempting a Wean at Home

Started by Rebekah Barney in Tube Weaning. Last reply by lynn melhuish Apr 18. 5 Replies

Help with drinking

Started by Amy Lynn Holt in Tube Weaning. Last reply by Eva Kerschischnik Apr 1. 1 Reply

Maintaining suck and swallow skills

Started by Shaindy in Tube Weaning. Last reply by Eva Kerschischnik Apr 1. 1 Reply

Tube wean for free - NoTube

Started by Eva Kerschischnik in Tube Weaning Dec 14, 2015. 0 Replies

Next steps after no tube

Started by Julia Hodgkins in Tube Weaning. Last reply by Julia Hodgkins Nov 18, 2015. 2 Replies

Losing weight in Tube weaning

Started by Pragathi Vasireddy in Tube Weaning. Last reply by lynn melhuish Nov 17, 2015. 3 Replies

The Best Diet For Men

Started by Glen Cogni in General Discussions Nov 10, 2015. 0 Replies

Srna starts to eat

Started by Eva Kerschischnik in Tube Weaning Oct 29, 2015. 0 Replies

Natural superfood for small appetite?

Started by Oliviane in Tube Weaning. Last reply by Olga Sep 26, 2015. 1 Reply

Groups

 

Notes

Donation to TFK

The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD. 

If you are willing and able to contribute, please deposit money into paypal account karelle8@bigpond.net.au. Unfortunately you can not pay NING direct. thanks Karelle

 

Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2015.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

Read Before You…

Continue

Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

Continue

Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

Events

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Sophie de Marval commented on Leslie Van Zee's blog post New to the group, looking forward to reading more
"Our baby had a tube from day 3, and much reflux with it. Apart from the side effects of just using a tube, we believe the amounts were probably too much for our baby. We started the online weaning program with No Tube early June, and our baby has…"
Thursday
Leslie Van Zee posted a blog post

New to the group, looking forward to reading more

I wanted to post since I can see that there aren't a lot of people on here recently. Just in case someone else cruises this and is going through similar challenges right now as well. My daughter Roxie was born at 29 weeks. She's 10 months old, 7 months adjusted at this point. She has been on an NG tube since birth. At 3 months of age she had open heart surgery and came home for the first time when she was 4 months old. She came home with oxygen tanks which, thankfully, we have not needed for…See More
Sep 21
Lynsey joined Markus Wilken's group
Thumbnail

Home Based Tube Weaning

A lot of families started a home-base weaning. I would like to discuss the experience you made and would share my experience with the home-based weaning. Everybody is welcome to discussMarkus See More
Sep 15
Lynsey joined Jane Marie T.'s group
Thumbnail

Babies Under 12 Mths--Weaned, Weaning, or Wanna Wean

This group is to help families of infants find each other more easily, so that our stories and tips can be shared, so that those who are new to this website don't have to hunt too hard to find people whose situation is similar to theirs.
Sep 15
Eva Kerschischnik commented on CCRC's blog post When and where to go for tube weaning for our micro preemie DD
"The right time to wean is when your child doesn't need a tube out of medical reasons anymore. "
Sep 10
Ashley joined Jane Marie T.'s group
Thumbnail

Babies Under 12 Mths--Weaned, Weaning, or Wanna Wean

This group is to help families of infants find each other more easily, so that our stories and tips can be shared, so that those who are new to this website don't have to hunt too hard to find people whose situation is similar to theirs.
Sep 6
CCRC commented on CCRC's blog post When and where to go for tube weaning for our micro preemie DD
"Sorry she was born at 24 weeks 5 days...Please we your need suggestions."
Sep 1
CCRC posted a blog post

When and where to go for tube weaning for our micro preemie DD

Hi all, I am a mother a micro preemie who just turned  seven month this week  (birthday wise).My daughter was born at 25 weeks 5 days in January 2016 and was in the NICU for almost 4 months. She underwent ROP laser surgery when she was in NICU, currently she is on omeprazole for GERD but do not have any other medical issue other than the feeding NG tubes that we know of. Her swallow test was fine too. When she was discharged from the NICU (May, 18th), she used to take 60ml/3hr drinking milk via…See More
Sep 1
Profile IconStar, Crystal, Rigby730 and 30 more joined Tube Fed Kids - Deserve to Eat
Sep 1
Profile IconBozena manko, Cheryl, Eliza Guerdjikova and 3 more joined Tube Fed Kids - Deserve to Eat
Aug 4
Ashleigh replied to Anna Kheradmand's discussion NG tube for unsafe swallow with silent aspiration
"Hi Anna I don't have any answers for you unfortunately but we're in the exact same position with our son, Jackson, who has just turned 8 months. He has been exclusively tube fed since 11 weeks and although we are allowed to offer oral…"
Aug 2
Sharmeen replied to Kerry's discussion No plan for NG tube weaning
"I am in the exact same situation you describe. Cleft palate baby who is ng tube fed. I am trying to get him to take solids but he just stores it in his mouth. I hope someone will post with helpful advice on weaning off thr ng tube."
Aug 1

Blog Posts

New to the group, looking forward to reading more

Posted by Leslie Van Zee on September 21, 2016 at 10:34am 1 Comment

I wanted to post since I can see that there aren't a lot of people on here recently. Just in case someone else cruises this and is going through similar challenges right now as well. 

My daughter Roxie was born at 29 weeks. She's 10 months old, 7 months adjusted at this point. She has been on an NG tube since birth. At 3 months of age she had open heart surgery and came home for the first time when she was 4 months old. She came home with oxygen tanks which, thankfully, we…

Continue

When and where to go for tube weaning for our micro preemie DD

Posted by CCRC on September 1, 2016 at 2:52pm 2 Comments

Hi all,

I am a mother a micro preemie who just turned  seven month this week  (birthday wise).My daughter was born at 25 weeks 5 days in January 2016 and was in the NICU for almost 4 months. She underwent ROP laser surgery when she was in NICU, currently she is on omeprazole for GERD but do not have any other medical issue other than the feeding NG tubes that we know of. Her swallow test was fine too.

When she was discharged from the NICU (May, 18th), she used to take 60ml/3hr…

Continue

don't loose it

Posted by lynn melhuish on January 31, 2016 at 12:25am 0 Comments

hiya everyone.

I always pop in and out of the site even though our tube wean has been successful because of being on here. I really hope the site doesn't loose all the top information on it as it it not been used as much. facebook is useful but it isnt as compact as on here. 

good luck to everyone

Gtube removal help

Posted by Andrew on December 2, 2015 at 11:01am 1 Comment

Hello all- Its been awhile simce Ive been to this group. My son had his gtube removed in August at 2 years old. He has had his gtube in since birth. It has been four months and the site has not closed yet. All the doctors say it will close but it will take more time for him. Does anyone know how ling it takes to close? Has anyone heard of this taking this long? Also, can anyone give me any suggestions to prevent leakage. His site has been leaking a bit in the morning and he has very sensitive… Continue

Videos

  • Add Videos
  • View All
 
 
 

Badge

Loading…

© 2016   Created by Karelle.   Powered by

Badges  |  Report an Issue  |  Terms of Service