just found this site. was wondering what people have done in reference to "when is it time to pull a tube" Have had it since 15months and we are now seven

  I have not been on here in a very long time. I have been feeling, well, defeated and embarrassed because it seems that no sooner had I sent out my joyful news, our Bella Rose got a bout of pneumonia in August. Ever since then, her wonderful eating progress has all but reversed. :'( So, here we are in January, and I am forced to tube feed her as she refuses to eat more than a couple of bites here and there, and she is "chipmunking" much of the time. We are back to the vomiting, and the sour…

We are almost 2 months into our wean with Spectrum. Our little guy has been doing well. He gained weight (1 lb) and stayed stable for a week. WE do have our battles about eating and some resistance to "rules" and behaviours but for the most part we were doing well..

Unfortunately the inevitable happened. He got the nasty cold that I have and eating and drinking has dipped considerably since yesterday evening. We are not surprised since he has milk from the bottle still and it is hard…

ok, so I am looking for hope, help, ideas  and any thing that can keep  my daughter tube free.    She  was born in  nov  2008 at 32 weeks 6 days  and weighed 3lbs even .   We were transfered to  another nicu (300 miles from home)  when she was 3 weeks due to nec. once there we also had another echo which confirmed her asd.  had a swallow test which she passed with no aspirations but showed slow motility.  when she was rlease from the nicu, she cam home on  very low flow oxygen and  the  ng…