Connecting Parents of Children with Tube Feeding Issues
Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).
Membership to Tube Fed Kids is FREE and we would like to keep it that way. The subscription each year is $240.00 US dollars. Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months. I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
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The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…Continue
I am new to this group, actually I'm new to blogging, forums and all of this kind of stuff. But what brings me here is something so important that I am willing to stumble around a bit in order to share this.
Eight years ago my wife, Robin, created an organic whole foods feeding tube formula for her dad who suffered a traumatic brain injury. As I am sure all of you know the stuff that passes for food is nothing more than high fructose sugar water. At least that is…Continue
When I was 20 weeks pregnant and the cardiologist began drawing a diagram of all the things wrong with my son's heart, how or if he was going to eat normally wasn't even close to being on my radar. When my son was on life support for a month and his chest kept open so I could see his beating heart, again, how or if he was going to eat wasn't even close to being on my radar. I had no idea my journey would extend for an infinite amount of time once we were past those hospital walls. By…Continue