Connecting Parents of Children with Tube Feeding Issues
Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).
Membership to Tube Fed Kids is FREE and we would like to keep it that way. The subscription each year is $240.00 US dollars. Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months. I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
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The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…Continue
Over the past week, Max has undergone a rapid wean in Adelaide, Australia. We have written a separate blog detailing our experience. To date it has been a successful partial wean!! We are so happy!! We are keeping up a very small feed of ~120mls at night for the time being as he makes the transition to an oral diet. Max is 5.5 yrs old.
Our blog address is www.shellb2013.wordpress.com
Met with Elijah's original OT today from the NICU. My husband wanted to get a second opinion. It is clear to me now that he does need a G-tube but it is still frustrating trying to understand how we are really supposed to wean him. It almost seems like if we follow the doctor's advice to a T he will never get off of the tube. It also frustrating now that he recently had a cold and that is going to delay the g-tube surgery until January...uh! Now that I know he needs the g-tube I just want…Continue
Hello to all! I successfully weaned our daughter of the NG quite some time ago I am left with a month+ supply of eteralite pump delivery sets for Moog (feeding bags 500ML and 1/2 month 100ml orange), tape & NG supplies (tape, replicare, barrier film etc). All sealed and in original packaging. I know almost none of us have perfect insurance and it can get expensive buying medical supplies, so if there is a family that could use these supplies I would be happy to give them to you. Just…Continue
I am glad to post here again. It has been a long time! Almost a year and I am happy to say Noelani has done wonderfully off the tube. Weight gain was slow at first (she trended just as my son did and he was perfectly healthy) and she grew consistently. She always progressed developmentally so we moved forward. now that all her teeth are in she is a completely normal well developed and healthy baby. Thank you all in this community that spoke with me, you are all lifesavers!Special thanks to…Continue