Connecting Parents of Children with Tube Feeding Issues
Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).
Membership to Tube Fed Kids is FREE and we would like to keep it that way. The subscription each year is $240.00 US dollars. Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months. I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
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The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…Continue
Ridiculously excited to post that you can now buy BLENDERIZED DIET MEALS online (in the US) from someone I find to be a true inspiration: Julie B, a fellow tubie mama and all-round amazing lady, launched her business: http://realfoodblends.com/online-ordering-now-live/
Here's the FAQ section, explaining the USDA/FDA approved manufacturing, calorie counts, and lots of other good information: …Continue
I am looking for a good feeding therapist to help my 9 month. She has acid reflux since she came out of NICU. the reason she got a g tube is because she got really ill when she was 3 months old. she was hospitalized for 2 months. She was on ventilator and lost her gag reflex. when she got out of the vent she forgot how to eat and therefore the g tube. her diagnosis is also failure to thrive.
I had an in home therapist coming to my house for the last three months but it did…Continue
Over the past week, Max has undergone a rapid wean in Adelaide, Australia. We have written a separate blog detailing our experience. To date it has been a successful partial wean!! We are so happy!! We are keeping up a very small feed of ~120mls at night for the time being as he makes the transition to an oral diet. Max is 5.5 yrs old.
Our blog address is www.shellb2013.wordpress.com
Met with Elijah's original OT today from the NICU. My husband wanted to get a second opinion. It is clear to me now that he does need a G-tube but it is still frustrating trying to understand how we are really supposed to wean him. It almost seems like if we follow the doctor's advice to a T he will never get off of the tube. It also frustrating now that he recently had a cold and that is going to delay the g-tube surgery until January...uh! Now that I know he needs the g-tube I just want…Continue