Connecting Parents of Children with Tube Feeding Issues
The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD.
If you are willing and able to contribute, please deposit money into paypal account firstname.lastname@example.org. Unfortunately you can not pay NING direct. thanks Karelle
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
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The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…Continue
as my subject says I "owe" this forum my story. Especially to Olga that was a huge encouragement and source of amazing info. She probably does not even remember me, it was in 2013. Hi, Olga!!!!
My kid was full term, born with low sugar. We ended up in NICU, her sugar got normal with usual treatment, they treated jaundice too. Once that was out of the way and she recovered she would not eat. She would eat 10-15 ml, sometimes full feed orally (mostly…Continue
I wanted to post since I can see that there aren't a lot of people on here recently. Just in case someone else cruises this and is going through similar challenges right now as well.
My daughter Roxie was born at 29 weeks. She's 10 months old, 7 months adjusted at this point. She has been on an NG tube since birth. At 3 months of age she had open heart surgery and came home for the first time when she was 4 months old. She came home with oxygen tanks which, thankfully, we…Continue
I am a mother a micro preemie who just turned seven month this week (birthday wise).My daughter was born at 25 weeks 5 days in January 2016 and was in the NICU for almost 4 months. She underwent ROP laser surgery when she was in NICU, currently she is on omeprazole for GERD but do not have any other medical issue other than the feeding NG tubes that we know of. Her swallow test was fine too.
When she was discharged from the NICU (May, 18th), she used to take 60ml/3hr…
I always pop in and out of the site even though our tube wean has been successful because of being on here. I really hope the site doesn't loose all the top information on it as it it not been used as much. facebook is useful but it isnt as compact as on here.
good luck to everyone