Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Tentative Reduction

Started by Jerome Kaidor in Tube Weaning. Last reply by Olga yesterday. 2 Replies

Kaiser Politics

Started by Jerome Kaidor in Tube Weaning. Last reply by Olga yesterday. 19 Replies

Starting wean again

Started by Heath pittiglio in Tube Weaning. Last reply by Heath pittiglio on Friday. 5 Replies

Reflux

Started by Heath pittiglio in Tube Weaning. Last reply by Heath pittiglio Aug 26. 2 Replies

weaning AGAIN, GAVIN now alomost 18 months, 14 corrected

Started by Heidi Casamasima in Tube Weaning. Last reply by Heidi Casamasima Aug 26. 8 Replies

NG, G-tube, or nothing?

Started by Lindsay Bromley in Tube Weaning. Last reply by Olga Aug 23. 3 Replies

Weaning 3 month old fron NG tube

Started by Michelle Moulton in Tube Weaning. Last reply by Amy Gonzales Aug 21. 2 Replies

Can I wean straight to solids?

Started by Christine S. in Tube Weaning. Last reply by Chesney D Aug 16. 36 Replies

Trying foofs

Started by Heath pittiglio in Tube Weaning Aug 16. 0 Replies

 

Notes

Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

Read Before You…

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

Events

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Latest Activity

Kacy replied to Kacy's discussion Vital stim after recent tube wean
"Ah, thanks! I think I must have only searched on a specific forum. I'm looking forward to reading through the questions and responses."
17 hours ago
Olga replied to Kacy's discussion Vital stim after recent tube wean
"Hi Kacy - I just read your success story. CONGRATULATIONS!!! So delighted for you and your family, and a tiny "high five" to your drinking and eating champion! The search interface on this site is almost invisible, but these were the…"
yesterday
Kacy posted discussions
yesterday
Olga replied to Jerome Kaidor's discussion Tentative Reduction
"Jerry, it sounds like Ilana easily replaced what was missing (4 ounces) via tube with 4 ounces orally. This is pretty rare, but I have seen it happen in babies (toddlers? nope).  So...now what?  :-D"
yesterday
Olga replied to Jerome Kaidor's discussion Kaiser Politics
"Well put. That's exactly what an OT here in Seattle told me. There is a lack of communication all around, and how many families just go with what they are told, and go along with the total lack of a weaning plan, even though their children are…"
yesterday
Olga replied to Christine S.'s discussion Blended diet and alternatives to the bottle
"Have you tried putting the puree or puree-formula mix into a measuring cup? You can go truly "mad scientist" and weigh the food before and after a meal, although that gets down to almost obsessive levels. (Full disclosure ha ha: It's…"
yesterday
Christine S. replied to Christine S.'s discussion Blended diet and alternatives to the bottle
"Thanks for sharing this with me. I've been looking at ways I can help her eat via the squeeze pouches. There are some silicone toppers I'm going to try. Right now I just feed her via spoon and it is hard to tell how much she actually gets."
Saturday
Kay Korsg replied to Jerome Kaidor's discussion Kaiser Politics
"It is easier for docs to put feeding tubes in but it is a lot harder for parents to look for resources to get your child to be weaned off.  Many docs tell you that feeding tubes are temporally but this short-term treatment becomes 6 months to…"
Saturday
Olga replied to Jerome Kaidor's discussion Kaiser Politics
"That's the screwed-up part. I'm not a medical  malpractice attorney (nor a class-action attorney), but you'd have to really shift the paradigm: in other words, leaving a feeding-tube in place *and* continuing to artificially feed…"
Saturday
Olga replied to Jerome Kaidor's discussion Tentative Reduction
"Wow, you guys!!! Sounds like there's appetite there, and a normal response to food when a bit hungry! She knew what to do when there wasn't all that formula in her belly! Whooop!"
Saturday
Jerome Kaidor posted a discussion

Tentative Reduction

All,   Today, we tried an experiment.  After a full continuous overnight feed, we gave her a smallreduction in calories during the morning feeds.  Instead of 4oz feeds, I gave her two oz, for adeficit of four ounces total.    We met Mom at home for the early afternoon feed.  Mom got the following into her, with nospecial fuss:   1/3 tub of Gerber stage2 chicken and apples   A full tub of Gerbers stage2 sweet potato and turkey  One ounce of formula.... All in one meal!See More
Saturday
Jerome Kaidor replied to Jerome Kaidor's discussion Kaiser Politics
"I read the link.      *********** Holy crap. *************    I don't think I could do that to my girl.   As for the medical community - my guess is they don't want to get sued.  And they…"
Saturday

Blog Posts

removal!!

Posted by chelsea on August 8, 2014 at 1:20am 0 Comments

Today Damien's g - tube will be removed! From the bottom of my heart I want to say thanks because it was this site who helped us the most. I didn't have any help from a professional. Everything that was done was either by my instinct or the advice of other mothers. I wish all of your children the best of luck. Hang in there!

A poem

Posted by Jerome Kaidor on July 31, 2014 at 1:29am 0 Comments

Here's a poem that wandered past my eyeballs the other day:





You can't make me eat that,

it's slimy and gooey

and icky and yucky

and greasy and gluey.

It looks like you made it

from maggots and mud,

some chopped hippopotamus,

bug heads and blood.



I hate it, I hate it,

I hate it to bits!

Just thinking about it

is giving me fits.

One taste and I'm certain

I'll instantly die...

You can't make me eat that,

so don't…

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Update on tubies

Posted by Heather on July 9, 2014 at 7:00pm 1 Comment

Great update on my kiddo's. My sons tube is out. We had to be really careful with weaning off of the NG tube because he would have hypoglycemia if he did not get enough calories. We took away 1/2 an ounce each time for 4 feelings a day and would not decrease again until he was taking what we took away. We also increased his bedtime feeding so that his stomach expected more food in it and it helped increase his hunger at other feedings. He always eats more in the evening and during the night so… Continue

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed.…

Posted by chelsea on July 7, 2014 at 12:42am 7 Comments

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed. He's almost 6 months now and He recently passed his swallow study so we begun giving him baby food. Ever since then his sippy cup drinking ( he hates bottles) has really picked up. My problem is that he usually gets 5 oz through his feeding tube. I decided to only let him get food orally except… Continue

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