Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Weaning and the effect of the pacifier

Started by Inderaj Sehmi in Tube Weaning. Last reply by Inderaj Sehmi Apr 9. 1 Reply

GERD, Tube weaning and what's possible ?

Started by Inderaj Sehmi in Tube Weaning. Last reply by Inderaj Sehmi Jan 17. 8 Replies

Bottle Adversion

Started by Jessica Goodsman in Tube Weaning Jan 17. 0 Replies

Child with reflux refuses to eat

Started by Aleksandra Paluhina in GRAZ FAQ. Last reply by Inderaj Sehmi Nov 28, 2016. 8 Replies

No plan for NG tube weaning

Started by Kerry in Tube Weaning. Last reply by Sharmeen Aug 1, 2016. 1 Reply

Attempting a Wean at Home

Started by Rebekah Barney in Tube Weaning. Last reply by lynn melhuish Apr 18, 2016. 5 Replies

Help with drinking

Started by Amy Lynn Holt in Tube Weaning. Last reply by Eva Kerschischnik Apr 1, 2016. 1 Reply

Maintaining suck and swallow skills

Started by Shaindy in Tube Weaning. Last reply by Eva Kerschischnik Apr 1, 2016. 1 Reply

Tube wean for free - NoTube

Started by Eva Kerschischnik in Tube Weaning Dec 14, 2015. 0 Replies

Next steps after no tube

Started by Julia Hodgkins in Tube Weaning. Last reply by Julia Hodgkins Nov 18, 2015. 2 Replies

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Donation to TFK

The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD. 

If you are willing and able to contribute, please deposit money into paypal account karelle8@bigpond.net.au. Unfortunately you can not pay NING direct. thanks Karelle

 

Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2015.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Sarah Boyle and Ruth Zillmann are now friends
Dec 5
Audrey Laffan posted a status
"Getting a G-tube in a few weeks, any tips?"
Dec 5
Kristie East commented on Ruth Zillmann's group Brisbane Parents
"Sarah do not got go the mater as they do not have the resources to handle a case like Elka. Please for the sake of Elka go to David Levitt at LCCH. David used to be in charge of the tube weaning programat Mater but the mater cannot handle Elka and…"
Dec 4
Sarah Boyle commented on Ruth Zillmann's group Brisbane Parents
"Thanks Kristie i’ll Take that on board and keep Investigating. I spoke to a team member at the Mater today too and she was very helpful so will compare their programs with LCCH. We certainly want the wean to be successful and don’t want…"
Dec 4
Kristie East updated their profile
Dec 4
Kristie East commented on Ruth Zillmann's group Brisbane Parents
"Premies are generally poor eaters due to tube dependence and laziness. Does Elka suffer from reflux and if not then maybe trial her on some goat formula. Leaving Adelaide is not a bad thing as there is skype and you have to move. Elka will not be…"
Dec 4
Kristie East commented on Ruth Zillmann's group Brisbane Parents
"Dear Sarah, I am wanting to tell you that since Thomas was six weeks of age we are still tube dependent and looking at starting on growth hormone.  This is not a quick fix and needs to be done when each child is ready. if you do it too soon…"
Dec 4
Sarah Boyle commented on Ruth Zillmann's group Brisbane Parents
"Hi,   I would like to share our story and hear any similar situations/ experiences.  We are very keen to do an intensive wean program in Adelaide, Australia as soon as possible for our daughter.  Elka was born at 25+6 weeks at 486g…"
Dec 4
Sarah Boyle posted a blog post

7 month old baby (corrected age), under 3rd %ile, advised against intensive wean

Hi, I would like to share our story and hear any similar situations/ experiences.  We are very keen to do an intensive wean program in Adelaide, Australia as soon as possible for our daughter.  Elka was born at 25+6 weeks at 486g with Severe IUGR (I had pre-eclampsia).  She is now almost 7 months corrected.  Her weight is under the 3rd percentile but she is tracking along her own growth curve.  Currently weighs only 5.38kg.  She was discharged from hospital on breast feeds with bottle then tube…See More
Dec 4
Profile IconBrandy, Zara Santo, Rebekah and 52 more joined Tube Fed Kids - Deserve to Eat
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Sarah Boyle joined Ruth Zillmann's group
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Brisbane Parents

Brisbane ParentsSee More
Dec 2
Terence M. Dovey updated their profile
Oct 18

Blog Posts

7 month old baby (corrected age), under 3rd %ile, advised against intensive wean

Posted by Sarah Boyle on December 4, 2017 at 4:19pm 0 Comments

Hi,

 

I would like to share our story and hear any similar situations/ experiences.  We are very keen to do an intensive wean program in Adelaide, Australia as soon as possible for our daughter.  Elka was born at 25+6 weeks at 486g with Severe IUGR (I had pre-eclampsia).  She is now almost 7 months corrected.  Her weight is under the 3rd percentile but she is tracking along her own growth curve.  Currently weighs only 5.38kg.  She was discharged from hospital on…

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Wanted to share - Teddy off the tube and is eating wonderfully now :)

Posted by Hannah McMahon on February 10, 2017 at 8:03am 0 Comments

I wanted to come back and post about my son's journey to give hope to those in this forum. I am so thankful to have found this forum when I did and am grateful for all the people who gave us advice/input. Thanks also to Markus for the Skype session that we had back then, which helped us in our time of…

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I "OWE" MY STORY

Posted by Maki volk on October 23, 2016 at 1:30pm 1 Comment

Hi everyone,

as my subject says I "owe" this forum my story. Especially to Olga that was a huge encouragement and source of amazing info. She probably does not even remember me, it was in 2013. Hi, Olga!!!!

My kid was full term, born with low sugar. We ended up in NICU, her sugar got normal with usual treatment, they treated jaundice too. Once that was out of the way and she recovered she would not eat. She would eat 10-15 ml, sometimes full feed orally (mostly…

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New to the group, looking forward to reading more

Posted by Leslie Van Zee on September 21, 2016 at 10:34am 3 Comments

I wanted to post since I can see that there aren't a lot of people on here recently. Just in case someone else cruises this and is going through similar challenges right now as well. 

My daughter Roxie was born at 29 weeks. She's 10 months old, 7 months adjusted at this point. She has been on an NG tube since birth. At 3 months of age she had open heart surgery and came home for the first time when she was 4 months old. She came home with oxygen tanks which, thankfully, we…

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