Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Child with reflux refuses to eat

Started by Aleksandra Paluhina in GRAZ FAQ. Last reply by shaermin Aug 25. 5 Replies

Tube Weaning Heart Baby

Started by Amber Bowie in Tube Weaning. Last reply by Jemma Aug 4. 6 Replies

First week of weaning

Started by Allison in Tube Weaning. Last reply by Olga Jun 11. 8 Replies

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Donation to TFK

The subscription for 2015/2016 has just been paid. It was $240.00 US dollars or $330 AUSD. 

If you are willing and able to contribute, please deposit money into paypal account karelle8@bigpond.net.au. Unfortunately you can not pay NING direct. thanks Karelle

 

Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Olga left a comment for Carrie Dolwick
"Carrie, we've talked before, right? Are you at Seattle Children's? Who's the GI? This is crazy. We didn't get a vent for our g/j, and the only time we saw vomiting of bile stuff was when the rate of feeds was way too high."
Friday
Olga replied to Carrie Dolwick's discussion Green output from g-tube- is this normal????
"Hi Carrie -- I've been chatting with tubie families for over 5 years, ever since we weaned my little guy from his tube, and I have NEVER heard of this. I would absolutely get a second opinion asap (in medicine, WHO you talk to matters much more…"
Friday
Carrie Dolwick posted a discussion

Green output from g-tube- is this normal????

Hi! My son got a g/jtube 7 weeks ago. After the surgery, they put a tube and bottle to catch his output from his gtube/stomach. They said the amount would reduce and we could stop "venting" him after a few days.We are now 7 weeks out and he is till putting out 170-200 ml/day. If we remove the vent, he vomits the green liquid out of his mouth. The GI doctor does not seem that concerned, meanwhile the dietician said that this is not normal and maybe we need some more opinions. Does anyone have a…See More
Friday
Nicole Nault is now a member of Tube Fed Kids - Deserve to Eat
Thursday
Eva Kerschischnik posted a discussion

NoTube - UK - new parents group on Facebook

Please feel free to join our UK-parents group on FB.Parents and team are happy to talk to you!Best regards, Evahttps://www.facebook.com/groups/335796749878442/?fref=nfSee More
Aug 27
Profile IconMaria Kharitonova, tiffany and Roxan calupaz joined Tube Fed Kids - Deserve to Eat
Aug 26
Karelle posted a status
"THANK YOU. we have enough donations now for the year. YAY! amazing kind caring wonderful parents. x"
Aug 25
shaermin replied to Sima Shah's discussion can't outsmart my 16 month old in the group Parents, medical teams & therapists group
"Erin,  we use Vitamix blender as makes the purees of uniform consistency.  I make 2 ounce high calorie jars (use breast milk storage bottles to freeze). You can create a receipt that is balanced with protein, carb and fats. A sample lunch…"
Aug 25
shaermin replied to Sima Shah's discussion can't outsmart my 16 month old in the group Parents, medical teams & therapists group
"Erin, those are great tips, very helpful.  My daughter seems to like only cold blueberries, so we tell her one bite of the blueberries and another bite of other foods.  That helps sometimes.."
Aug 25
shaermin joined Markus Wilken's group
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Parents, medical teams & therapists group

Tubefedkids gives parents a great opertunity to discuss all aspects of tube feeding and weaning. My idea of this group is to broaden the discussion. Maybe therapist want to discuss with themselves and with you as parents. Would be nice...See More
Aug 25
Karelle posted a status
"Thank you SO MUCH for everyone's generous donations. I really appreciate it. I will send each of you a message. such a wonderful group. x"
Aug 25
Karelle replied to Karelle's discussion Donations for TFK Subscription
"Thank you so much for your generosity!     x"
Aug 25

Blog Posts

Weaning advice please!

Posted by VeLynn Tapia on April 28, 2015 at 8:44am 7 Comments

I just posted this question on the Homebased Tube Weaning group page: We have been weaning our 11 month old for 9 days now. The first 5 days we reduced his feeds by 10% to get down to 50%. We stayed there for a day and then stopped all tube feeds on day 7. He was getting 30 oz before, and on day 7 he ate 11.5 oz. Day 8 he ate 12 oz. Some of this was dream feeds. But I'm afraid to dream feed him too much at this point because I want him to learn to eat when he is hungry. Once he seems to be… Continue

Tube weaning program

Posted by Ashley on April 23, 2015 at 10:18am 4 Comments

Has anyone completed spectrums program successfully? My daughter starts next month!

No Aspirating!!!!

Posted by VeLynn Tapia on April 18, 2015 at 9:13am 12 Comments

We just went back for a swallow study a few days ago and Donovan didn't aspirate anything!! He is cleared to eat anything orally. He will take purees by mouth a little if he is very hungry and will take a little from his bottle if he is very hungry as well- maybe 1/2 and ounce. Is is now in the 15th percentile weight wise, but our doctor wants to see him stay there for awhile before we wean completely. He is also refering us to the feeding team at the Children's hospital here (Riley-… Continue

Dutch

Posted by Colleen Anderson on March 28, 2015 at 4:34am 1 Comment

My son is just about 8 months old.  He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in.   He takes about 40-50% by mouth and his vomiting has decreased significantly.  We were on both zantac and prilosec  but are down to prilosec only.  I don't feel that his pediatrician really knows what to tell us.

The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can…

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