Connecting Parents of Children with Tube Feeding Issues
Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).
Membership to Tube Fed Kids is FREE and we would like to keep it that way. The subscription each year is $240.00 US dollars. Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months. I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
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The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…Continue
Its been awhile since I posted here but I wanted to thank you all for the support, advice, hope and courage I got here. If it weren't for you all sharing your experiences, I never would have gotten the courage and strength and knowledge that I needed to get my daughter off her feeding tube.
The tube came out 6 days after I miscarried at 23 weeks. That day was a beautiful rainbow ammist one of the stormiest times of my life. Allison is still extremely underweight, but…Continue
so we got the go ahead from our dietician to try to get her off the tube feeds. she suggested we go cold turkey because she has such good eating skills already. also slower weening doesnt seem to work with her so we need to try this and see what she does. so yester day was technically the first day although she did have her morning tube feed, around 4pm I started to notice she was feeling not right maybe a little hungry and cranky, she ate very small amt a few times the first day maybe 200…Continue