"Hi Marla Jack's surgeon wouldn't let us do continuous feeds either as his reflux was so bad that he was likely to aspirate - he refluxed freely to his mouth. He also used to move around the bed alot, even ending up with his…"
Tube Fed Kids - Deserve to Eat
Connecting Parents of Children with Tube Feeding Issues
Forum
Feeding Tube & Sleeping Problems. HELP!!!!!
Started by Marla Finnestad in Tube Weaning. Last reply by Jody D 6 hours ago. 9 Replies 0 Likes
advice needed for 2nd wean attempt please
Started by Natalie in Tube Weaning. Last reply by Olga 11 hours ago. 31 Replies 0 Likes
The girl who never ate
Started by Eva Kerschischnik in Tube Weaning. Last reply by Eva Kerschischnik yesterday. 2 Replies 0 Likes
Long term ng use
Started by Eilidh in Tube Weaning. Last reply by Anna Thallon on Friday. 6 Replies 0 Likes
Waited too long for step 2. Did I mess up?
Started by mallory kindle in Tube Weaning. Last reply by Olga on Friday. 8 Replies 0 Likes
Did you ever cheat on your wean?
Started by mallory kindle in Tube Weaning Progress "Tips & Tricks". Last reply by Anna Thallon May 15. 4 Replies 0 Likes
How long is milk good continuous overnight?
Started by Renee in General Discussions. Last reply by Anna Thallon May 15. 3 Replies 0 Likes
From continuous to bolus: Seeking advice!
Started by J Ho in General Discussions. Last reply by Renee May 15. 21 Replies 0 Likes
Troubleshooting connection
Started by Renee in General Discussions. Last reply by Renee May 14. 2 Replies 0 Likes
Successful tubeweaning-camp in Mayenne from Notube finished today
Started by Eva Kerschischnik in Tube Weaning May 11. 0 Replies 0 Likes
a hello and update
Started by laura in Tube Weaning Success Stories. Last reply by Anna Thallon May 9. 5 Replies 0 Likes
volume or calories?
Started by Mysti Harris in General Discussions. Last reply by Anna Thallon May 9. 1 Reply 0 Likes
dream feeds?
Started by Mysti Harris in Tube Weaning. Last reply by Anna Thallon May 9. 3 Replies 0 Likes
Tube scheduled to be out in 3 weeks - worries and fears...
Started by Gloria Brito-Williams in Tube Weaning Success Stories. Last reply by Jody D May 5. 1 Reply 0 Likes
7 Months & Feeding Tube Dependant- Has Trouble Swallowing
Started by Marla Finnestad in Tube Weaning. Last reply by christine beyton May 4. 7 Replies 0 Likes
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Heart Babies
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Babies Under 12 Mths--We…
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Home Based Tube Weaning
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Melbourne Parents
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Notes
Donation to TFK
Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).
Membership to Tube Fed Kids is FREE and we would like to keep it that way. The subscription each year is $240.00 US dollars. Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months. I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…
Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.
Message from TFK Moderator
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
Read Before You…
ContinueCreated by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.
Purpose of this Forum
The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…
ContinueCreated by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.
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Latest Activity
Olga replied to Natalie's discussion advice needed for 2nd wean attempt please"mallory -- this sounds really great! (and we flew by the seat of our pants, too, because the idea that hunger/appetite drives eating is not popular in tube-feeding circles... we were told "you're doing great!" ok. i talked to them…"
mallory kindle replied to Natalie's discussion advice needed for 2nd wean attempt please"It is funny that our two sound exactly the same and me and you are also asking the same questions :) As far as how long it took me to get down to 60%, see my post right below yours about "waited too long for the the second step, did I mess…"
Rose Johnson replied to Marla Finnestad's discussion Feeding Tube & Sleeping Problems. HELP!!!!!"Hi Marla, Sorry it's taken me so long! We have all been sick- haven't had sleep in a while. But even with that said- this whole thing does get better. Everything does. I'm sorry you two are having a rough time. What are you feeding…"
Natalie replied to Natalie's discussion advice needed for 2nd wean attempt please"Wow Mallory, they sound so similar! Do you mind telling me how long it took you to get down to 60%? Did you do it quickly or did you drop a bit then wait for him to eat the missing calories then drop some more? Will let me feed him some yoghurt on a…"
Eva Kerschischnik replied to Eva Kerschischnik's discussion The girl who never ate"You are wellcome!"
Jen replied to Eva Kerschischnik's discussion The girl who never ate"I had never seen that documentary before. Thanks for posting. Great news she is now eating!"
mallory kindle replied to Natalie's discussion advice needed for 2nd wean attempt please"Hi Natalie. I must admit that I have not read this entire thread, so forgive me if I am saying something already said or something you have already worked out. My son is 16 months and before we started the wean he was exactly like yours, minus…"
Anna Thallon replied to Marla Finnestad's discussion Feeding Tube & Sleeping Problems. HELP!!!!!"Also just looking at your other post, worth highlighting that my daughter vomitted all the time with the NG - NG's cause reflux and vomititng. Has it improved with the PEG or not? Am not sure if PEG's cause vomitting too because of it…"
Olga replied to Marla Finnestad's discussion Feeding Tube & Sleeping Problems. HELP!!!!!"what the gi HAS to do is work with you to fix things that aren't working. that's their flippin' job. i don't ask a doc to file my taxes, but i do expect them to work with a med regimen until it reaches the best level that it can…"
Blog Posts
Unglaubliche Stories vom erheblich süßem.
Posted by Maxwell Antoine on May 13, 2013 at 5:11pm 0 Comments 0 Likes
Gestern bei den ingifts: Schlafen die den endlich? fragte mini ungeheuer leise.„Nee, ich glaube, noch nicht“ sagte freaky kreaturen „soll ich mal klären?“„Ach nee, will nicht“ „Vielleicht klappt es heute Nacht und wir schlafen nicht schon wieder ein, paßt mal auf die bosse neben Euch auf, ob sie noch wach sind“ freaky monsters Interpret wurde ein bißchen laut.
„Pst, pst“ kam es da auch gleich von dem Wache monster an der Tür „leise sein“„Und wenn Eure Anrainer ungeheuer einschlafen wollen,… Continue
„Pst, pst“ kam es da auch gleich von dem Wache monster an der Tür „leise sein“„Und wenn Eure Anrainer ungeheuer einschlafen wollen,… Continue
Liquid Hope... Finally an alternative.
Posted by Brian McGee on April 29, 2013 at 11:59pm 0 Comments 1 Like
Hello,
I am new to this group, actually I'm new to blogging, forums and all of this kind of stuff. But what brings me here is something so important that I am willing to stumble around a bit in order to share this.
Eight years ago my wife, Robin, created an organic whole foods feeding tube formula for her dad who suffered a traumatic brain injury. As I am sure all of you know the stuff that passes for food is nothing more than high fructose sugar water. At least that is…
Continue Kurze Geschichten von dem erheblich grossen.
Posted by Desmond Souza on April 28, 2013 at 11:03pm 0 Comments 0 Likes
Neulich bei ingifts: Schlafen die den schon? sprach mini kreaturen ganz leise.„Nee, scheinbar nicht“ antwortete freaky bosse „soll ich vielleicht mal klären?“„Ach nee, mag nicht“ „Hoffentlich passiert es heute Nacht und wir schlafen nicht wieder ein, paßt mal auf die bosse neben Euch auf, ob sie noch wach sind“ freaky monsters Gesangssolist wurde ein bißchen laut.
„Pst, pst“ kam es da auch gleich von dem Wache bosse an der Tür „leise sein“„Und wenn Eure Nachbar ungeheuer eindösen ausbitten,… Continue
„Pst, pst“ kam es da auch gleich von dem Wache bosse an der Tür „leise sein“„Und wenn Eure Nachbar ungeheuer eindösen ausbitten,… Continue
No One Ever Tells You Your Baby May Never Suck or Take A Bottle When They Tell You About Their Congenital Heart Defects
Posted by Marla Finnestad on April 27, 2013 at 5:20pm 3 Comments 0 Likes
When I was 20 weeks pregnant and the cardiologist began drawing a diagram of all the things wrong with my son's heart, how or if he was going to eat normally wasn't even close to being on my radar. When my son was on life support for a month and his chest kept open so I could see his beating heart, again, how or if he was going to eat wasn't even close to being on my radar. I had no idea my journey would extend for an infinite amount of time once we were past those hospital walls. By…
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Wesley eating
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003.AVI
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