Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

Members

Forum

Weaning 3 month old fron NG tube

Started by Michelle Moulton in Tube Weaning. Last reply by Amy Gonzales 12 hours ago. 2 Replies

Can I wean straight to solids?

Started by Christine S. in Tube Weaning. Last reply by Chesney D on Saturday. 36 Replies

Trying foofs

Started by Heath pittiglio in Tube Weaning on Saturday. 0 Replies

Stopped wean

Started by Heath pittiglio in Tube Weaning Aug 13. 0 Replies

weaning AGAIN, GAVIN now alomost 18 months, 14 corrected

Started by Heidi Casamasima in Tube Weaning. Last reply by Heidi Casamasima Aug 13. 7 Replies

Should I start weaning?

Started by Nikkie Wong Shing in Tube Weaning Aug 12. 0 Replies

Very new to this...Please help!

Started by Kristina Scarpa in Tube Weaning Aug 11. 0 Replies

Change.org petition

Started by Lesleyg in Tube Weaning Aug 10. 0 Replies

Small success yesterday

Started by Jerome Kaidor in Tube Weaning. Last reply by Jerome Kaidor Aug 9. 6 Replies

Not sure I can do this

Started by Heath pittiglio in Tube Weaning. Last reply by Kerry Aug 8. 4 Replies

 

Notes

Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

Continue

Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

Read Before You…

Continue

Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

Continue

Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

Events

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Amy Gonzales replied to Michelle Moulton's discussion Weaning 3 month old fron NG tube
"Hi. I'm new here. I have a 3 1/2 month old too (5 weeks actual- 29 weeker). We just came home after 98 days in the NICU almost two weeks ago on an ng tube. I feel like they were over feeding him there and he was never hungry but he also had…"
12 hours ago
Profile IconYoung Joo, Leah , Nicole and 10 more joined Tube Fed Kids - Deserve to Eat
yesterday
Robert Webb replied to Nadine Ewing's discussion Weaning my 4 yo of 100% tube dependant in the group Home Based Tube Weaning
"Hi Hesti and Nadine   BIG support and hugs to you both!! Hey there, don't beat yourself up saying your intervention took Nadines instinct to eat and drink away! You didn't, you can't. She wants that water off of the garden…"
Monday
Robert Webb joined Markus Wilken's group
Thumbnail

Home Based Tube Weaning

A lot of families started a home-base weaning. I would like to discuss the experience you made and would share my experience with the home-based weaning. Everybody is welcome to discussMarkus See More
Monday
mollyfm replied to Nadine Ewing's discussion Weaning my 4 yo of 100% tube dependant in the group Home Based Tube Weaning
"Hi Hesti, I just wanted to send you support! We weaned our child through Spectrum but he was much younger and I can imagine how hard it is with an older child. Is she your only one? Does eating around others perk her interest? I know our kids are…"
Sunday
Chloe brown replied to Chloe brown's discussion next stage of weaning- down to -30% and interested in food but now stalling!
"Latest update on Isla- She's doing great- we've stalled at 30% tube feed and really reduced the overnight and she's still really keen to try all finger foods and drinking with a straw (although she'll only drink water still),…"
Sunday
Nadine Ewing added a discussion to the group Home Based Tube Weaning
Thumbnail

Weaning my 4 yo of 100% tube dependant

Hi everyone,My daughter is ex 24-weeker who was trached, on the ventilator & O2 from birth till about 2.5 yo. She is now trach & O2 free. We have been working with Birth23 program, outpatient feeding therapy at CCMC also OT from her school and so far we only can get her just licking on certain food. We feel like in the darkness with no sight of light.We live in CT with no resources nearby to help with the weaning thru calorie reduction which we believe will work the best for her. We…See More
Saturday
Nadine Ewing joined Markus Wilken's group
Thumbnail

Home Based Tube Weaning

A lot of families started a home-base weaning. I would like to discuss the experience you made and would share my experience with the home-based weaning. Everybody is welcome to discussMarkus See More
Saturday
Chesney D replied to Christine S.'s discussion Can I wean straight to solids?
"Christine - Your plan to wean after she's off narcotics sounds good. I too was worried that K didn't know how to suck, but she most certainly did. Speech told me there was a window of 4-6 months for learning to suck, but I'm not sure…"
Saturday
Heath pittiglio posted a discussion

Trying foofs

Stopped weaninge, bout a wk ago on gull feeds again hence not hungry any point to offer food or wait to starting wean again
Saturday
Heidi Casamasima replied to Heidi Casamasima's discussion gagging on solids???? in the group Home Based Tube Weaning
"Hi Crystal, thanks for your reply! we have tried MUSh or puree and although he will lean forward to taste it and occasionally take a bite he gags and sometimes it causes him to puke. I do believe it is his gag reflex atleast partly because we have…"
Friday
Markus Wilken and Heidi Casamasima are now friends
Friday

Blog Posts

removal!!

Posted by chelsea on August 8, 2014 at 1:20am 0 Comments

Today Damien's g - tube will be removed! From the bottom of my heart I want to say thanks because it was this site who helped us the most. I didn't have any help from a professional. Everything that was done was either by my instinct or the advice of other mothers. I wish all of your children the best of luck. Hang in there!

A poem

Posted by Jerome Kaidor on July 31, 2014 at 1:29am 0 Comments

Here's a poem that wandered past my eyeballs the other day:





You can't make me eat that,

it's slimy and gooey

and icky and yucky

and greasy and gluey.

It looks like you made it

from maggots and mud,

some chopped hippopotamus,

bug heads and blood.



I hate it, I hate it,

I hate it to bits!

Just thinking about it

is giving me fits.

One taste and I'm certain

I'll instantly die...

You can't make me eat that,

so don't…

Continue

Update on tubies

Posted by Heather on July 9, 2014 at 7:00pm 1 Comment

Great update on my kiddo's. My sons tube is out. We had to be really careful with weaning off of the NG tube because he would have hypoglycemia if he did not get enough calories. We took away 1/2 an ounce each time for 4 feelings a day and would not decrease again until he was taking what we took away. We also increased his bedtime feeding so that his stomach expected more food in it and it helped increase his hunger at other feedings. He always eats more in the evening and during the night so… Continue

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed.…

Posted by chelsea on July 7, 2014 at 12:42am 7 Comments

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed. He's almost 6 months now and He recently passed his swallow study so we begun giving him baby food. Ever since then his sippy cup drinking ( he hates bottles) has really picked up. My problem is that he usually gets 5 oz through his feeding tube. I decided to only let him get food orally except… Continue

Videos

  • Add Videos
  • View All
 
 
 

Badge

Loading…

© 2014   Created by Karelle.   Powered by

Badges  |  Report an Issue  |  Terms of Service