Connecting Parents of Children with Tube Feeding Issues
Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).
Membership to Tube Fed Kids is FREE and we would like to keep it that way. The subscription each year is $240.00 US dollars. Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months. I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…
This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.
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The membership of Tube Fed Kids is primarily parents of past and present tube fed children. The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey.
This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…Continue
My son is just about 8 months old. He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in. He takes about 40-50% by mouth and his vomiting has decreased significantly. We were on both zantac and prilosec but are down to prilosec only. I don't feel that his pediatrician really knows what to tell us.
The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can…Continue
Hello everyone, My son sam has had his ng tube for 2 months now. He just turned a yr, still not much of an appetite. He gets 4 bolus feeds in a 24 hr period, Drs switched from pump to gravity feeds which he has been vomiting up. He is going to start prilosec. He's never been a big drinker of formula and has always been small, Drs diagnosed him with failure to thrive and put in tube in a Jan, with hospitals stays and rsv, he will not eat baby food anymore only crunches and crackers. I think…Continue