Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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Pulled the Ng tube

Started by Chandra Canning in Tube Weaning. Last reply by Chesney D 20 hours ago. 12 Replies

Submissions needed!!!

Started by Laura O in Lobbying the Government. Last reply by Janelle Aronsten Apr 12. 5 Replies

Us again!

Started by Susannah in Tube Weaning. Last reply by Trish McDonnell Apr 4. 30 Replies

DECREASED reflux with G tube removal?

Started by Heidi Casamasima in Tube Weaning. Last reply by Heidi Casamasima Apr 3. 5 Replies

Almost there!

Started by Anthem76 in Tube Weaning Success Stories. Last reply by Anthem76 Mar 29. 2 Replies

 

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Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Olga replied to LiamsMom's discussion Need advice - Weaning a 21 month old
"Sounds like a good plan -- will be sending good thoughts your way on the new arrival and the wean! also sending wishes for compassionate and experienced people to assist you with your tiny one when she arrives. hugs!"
9 hours ago
LiamsMom replied to LiamsMom's discussion Need advice - Weaning a 21 month old
"Sorry to hear that Kay.  Hope you little one feels better soon. 4/17/14 - 25lbs 2oz. I think we are going to start the wean the day we go in for our 2nd's delivery.  Liam will be with his grandma for 2 days so it's safer to cut…"
18 hours ago
Chesney D replied to Chandra Canning's discussion Pulled the Ng tube
"We introduced baby food during the wean at 6 months.  My daughter also would refuse any food with the NG, so I didn't even try solids before then.  She does seem to hate purees.  Our miracle superfood for her that she loves is…"
20 hours ago
Olga replied to Chandra Canning's discussion Pulled the Ng tube
"So we started very casually, but we had a boy who wasinterested in food. I shopped for groceries with him, we smelled and touched food together, I had him in the kitchen when I cooked and on my lap at mealtimes. Our first food was actually him…"
20 hours ago
Chandra Canning replied to Chandra Canning's discussion Pulled the Ng tube
"Oh exactly. Unless it is a big loss I refuse to reinsert it. He won't take anything by mouth with it in. He gags and pukes every feed with it in. Not doing it. He needs to learn how to eat and he will. Just wondering how you got your child to…"
21 hours ago
Olga replied to Chandra Canning's discussion Pulled the Ng tube
"Was he eating table food before the ng went in? My take was that as long as my son was enjoying food, variety would come later (and it did!!). He might finally feel comfortable swallowing, so I would just be patient. In terms of the weight loss,…"
21 hours ago
Chandra Canning replied to Chandra Canning's discussion Pulled the Ng tube
"We took his to the doctors on Tuesday and he lost 5oz. Wh have another appt tomorrow so we will see. He is still drinking 600-650ml. When did you start introducing table food? Any tips? He still isn't interested in eating table foods or baby…"
21 hours ago
Chesney D posted a photo
yesterday
Chesney D replied to Chandra Canning's discussion Pulled the Ng tube
"I don't know whether the calorie requirements remain.  I know that my daughter had a perfect repair 7 months ago, and she's still sleepier and more lethargic than a normal 9 month old.  But her caloric requirement is lower than a…"
yesterday
Olga replied to Chandra Canning's discussion Pulled the Ng tube
"(errr, in terms of weaning that would be february 2010 for us -- he's about to turn 6, at 98% for height, and 85% weight, so nicely proportioned) chesney: do you know if the increased calorie requirements stay for heart babies after repair? or…"
yesterday
Chesney D replied to Chandra Canning's discussion Pulled the Ng tube
"It sounds like your son is weaning himself.  Also - 1200 ml of 27 oz. formula sounds like an awful lot... but, I don't know your son's metabolic requirements.  I know that HLHS kids burn off calories really quickly, so I would…"
yesterday
Sal replied to Sal's discussion any tube weaning programs within Canada?
"No assessment was done by notube team as we did not send the reports. as mentioned earlier, we asked our pediatrician for reports and she suggested according to ENT specialist my son is aspirating and they don't suggest him to go for weaning…"
yesterday

Blog Posts

Meds to increase hunger

Posted by Heather on April 9, 2014 at 8:52am 1 Comment

Has anyone used medication to increase appetite and wean off of the tube?

Trying to get off the NG tube

Posted by Heather on April 6, 2014 at 10:06am 5 Comments

A 50% wean did not work. His blood pressure medicine caused hypoglycemia and he started shaking. We are now back to offering the bottle each feeding and he will take anywhere from 30 to 5 mls (most of the time taking around 10). We stopped the scheduled feeds at night and let him wake up to eat. He now will put the bottle in his mouth and keeps his tongue down but does not suck. Or he will suck and fill up his mouth and then spit out the liquid. A g tube is being tossed around and at this point… Continue

We are Tube Free

Posted by sarah buckbee on March 26, 2014 at 11:02pm 1 Comment

Its been awhile since I posted here but I wanted to thank you all for the support, advice, hope and courage I got here. If it weren't for you all sharing your experiences, I never would have gotten the courage and strength and knowledge that I needed to get my daughter off her feeding tube.

 

The tube came out 6 days after I miscarried at 23 weeks.  That day was a beautiful rainbow ammist one of the stormiest times of my life.  Allison is still extremely underweight, but…

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2nd day of ween

Posted by Shannon Hernandez on March 22, 2014 at 1:45pm 1 Comment

so we got the go ahead from our dietician to try to get her off the tube feeds. she suggested we go cold turkey because she has such good eating skills already. also slower weening doesnt seem to work with her so we need to try this and see what she does. so yester day was technically the first day although she did have her morning tube feed, around 4pm I started to notice she was feeling not right maybe a little hungry and cranky, she ate very small amt a few times the first day maybe 200…

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