Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues



Back on the tube again 8-(

Started by bttrflyvld in General Discussions. Last reply by Olga on Saturday. 13 Replies

Free skype or phone call - NoTube

Started by Eva Kerschischnik in Tube Weaning on Wednesday. 0 Replies tibe.weaning

Started by missymoo in Tube Weaning. Last reply by missymoo May 18. 2 Replies

Wean from ng tube

Started by anne pera in Tube Weaning. Last reply by Olga May 16. 1 Reply

5 month NG tube wean.

Started by Josie in Tube Weaning. Last reply by VeLynn Tapia Apr 23. 22 Replies

Success with older kids?

Started by Jeannine Militello in GRAZ FAQ. Last reply by Eva Kerschischnik Apr 15. 1 Reply



Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…


Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

Read Before You…


Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…


Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.



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Latest Activity

Profile IconKosh, Wagna Evangelista and Janet Serafin joined Tube Fed Kids - Deserve to Eat
19 hours ago
Olga and Katelyn are now friends
Olga left a comment for Katelyn
"Sure thing -- Karen Quinn-Shea in the OT department runs the weaning program, for kids over one year. She could also advise you on doing a home wean. If you happen to see Dr. Brian Morray, tell him hi from me! He was an attending resident when we…"
Profile IconAlaynna, Katelyn , Andrew and 7 more joined Tube Fed Kids - Deserve to Eat
Olga left a comment for Katelyn
"HI Katelyn -- If you are looking for weaning assistance, you can look into the Seattle Children's program (They don't advertise it, but it's there, run by Karen Quinn-Shae). Also, Gay Lloyd Pinder in Renton/Kent does weans as well.…"
Lisa joined Markus Wilken's group

Home Based Tube Weaning

A lot of families started a home-base weaning. I would like to discuss the experience you made and would share my experience with the home-based weaning. Everybody is welcome to discussMarkus See More
Lisa joined Jane Marie T.'s group

Babies Under 12 Mths--Weaned, Weaning, or Wanna Wean

This group is to help families of infants find each other more easily, so that our stories and tips can be shared, so that those who are new to this website don't have to hunt too hard to find people whose situation is similar to theirs.
Olga replied to bttrflyvld's discussion Back on the tube again 8-(
"Oh good. What about trying him on a motility drug before the g-tube? Just in case it IS a gastric emptying issue, I would guess that maybe trying something in the meantime is a low-risk proposition? I'm glad they are still investigating.…"
bttrflyvld replied to bttrflyvld's discussion Back on the tube again 8-(
"I mean why he doesn't want eat."
bttrflyvld replied to bttrflyvld's discussion Back on the tube again 8-(
"Yes they will still look into the reasons why he didn't want eat."
Olga replied to bttrflyvld's discussion Back on the tube again 8-(
"Oh boy indeed. So my little dude did everything physical with a gj tube, not a button, and it was fine. We kept him in onesies, which keep him away from it. Didn't have issues. If you're interested, you can feed him real food through the…"
bttrflyvld replied to bttrflyvld's discussion Back on the tube again 8-(
"I just got called by our GI specialist and Kyler is getting a G-tube next week.  I'm not sure if I'm relieved or scared.  The NG is just plane awful, but now he has to go through surgery again. Oh well, I guess If it's going…"

Blog Posts

Weaning advice please!

Posted by VeLynn Tapia on April 28, 2015 at 8:44am 7 Comments

I just posted this question on the Homebased Tube Weaning group page: We have been weaning our 11 month old for 9 days now. The first 5 days we reduced his feeds by 10% to get down to 50%. We stayed there for a day and then stopped all tube feeds on day 7. He was getting 30 oz before, and on day 7 he ate 11.5 oz. Day 8 he ate 12 oz. Some of this was dream feeds. But I'm afraid to dream feed him too much at this point because I want him to learn to eat when he is hungry. Once he seems to be… Continue

Tube weaning program

Posted by Ashley on April 23, 2015 at 10:18am 4 Comments

Has anyone completed spectrums program successfully? My daughter starts next month!

No Aspirating!!!!

Posted by VeLynn Tapia on April 18, 2015 at 9:13am 12 Comments

We just went back for a swallow study a few days ago and Donovan didn't aspirate anything!! He is cleared to eat anything orally. He will take purees by mouth a little if he is very hungry and will take a little from his bottle if he is very hungry as well- maybe 1/2 and ounce. Is is now in the 15th percentile weight wise, but our doctor wants to see him stay there for awhile before we wean completely. He is also refering us to the feeding team at the Children's hospital here (Riley-… Continue


Posted by Colleen Anderson on March 28, 2015 at 4:34am 1 Comment

My son is just about 8 months old.  He was diagnoes with FTT and possibly GERD at 4 months old and that is when the NG tube went in.   He takes about 40-50% by mouth and his vomiting has decreased significantly.  We were on both zantac and prilosec  but are down to prilosec only.  I don't feel that his pediatrician really knows what to tell us.

The Gastro says he needs to be consistently in the 5th percentile on the weight chart and taking majority of feed by mouth before tube can…



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