Tube Fed Kids - Deserve to Eat

Connecting Parents of Children with Tube Feeding Issues

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weaning AGAIN, GAVIN now alomost 18 months, 14 corrected

Started by Heidi Casamasima in Tube Weaning. Last reply by Heidi Casamasima 17 hours ago. 4 Replies

Can I wean straight to solids?

Started by Christine S. in Tube Weaning. Last reply by Christine S. yesterday. 19 Replies

Sucking a dummy

Started by Heath pittiglio in Tube Weaning. Last reply by Kay Korsg on Monday. 2 Replies

hate waiting n watching

Started by Heath pittiglio in Tube Weaning. Last reply by Olga on Saturday. 6 Replies

Intro

Started by Jerome Kaidor in Tube Weaning. Last reply by Kay Korsg on Friday. 11 Replies

Heaths update

Started by Heath pittiglio in Tube Weaning. Last reply by Olga Jul 16. 1 Reply

Weaning 6 mo heart baby w bottle aversion

Started by Celia Williams in Tube Weaning. Last reply by Heath pittiglio Jul 16. 5 Replies

Weaning 6.5 month old

Started by Kerry in Tube Weaning. Last reply by Olga Jul 15. 3 Replies

 

Notes

Donation to TFK

Each year Tube Fed Kids pays a subscription to NING to stay online (it used to be free).

Membership to Tube Fed Kids is FREE and we would like to keep it that way.  The subscription each year is $240.00 US dollars.  Last year members kindly donated what they could afford towards to cost of the annual subscription which was enough for 18 months.  I have just paid for the next year Aug 2012-Aug 2013 by paypal. If you are willing to…

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Created by Karelle Aug 23, 2012 at 2:04pm. Last updated by Karelle Aug 24, 2012.

Message from TFK Moderator

This forum is a way to share experiences about Tube Dependency, Tube Feeding and Tube Weaning. Members of TFK are mainly parents who have been through the Graz method or who have used the principles of child-led, caloric-reduction style of tube weaning. Or they are TFK members who are Health Professionals interested in learning more from families and their experiences.

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Created by Karelle Mar 14, 2012 at 6:42am. Last updated by Karelle Apr 7, 2012.

Purpose of this Forum

The membership of Tube Fed Kids is primarily parents of past and present tube fed children.  The forum is solely for the purpose of sharing experiences and supporting other parents during their own tube feeding/weaning journey. 

This site is run by parents for parents. Tube Fed Kids is a totally independent parent social networking…

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Created by Karelle Jan 5, 2011 at 10:06pm. Last updated by Karelle May 1, 2011.

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Latest Activity

Profile IconChrista and Lindsay Bromley joined Tube Fed Kids - Deserve to Eat
3 hours ago
mollyfm replied to Kerry's discussion 3 weeks into wean of now 77 Month old
"We have a baby with LM (two supraglottoplastys) and weaned around 8 mos.  Our weight gain has been slow but steady - also 4 oz is really  not much at all! Especially with illness, so great going and have faith she's going to get…"
17 hours ago
Heidi Casamasima replied to Heidi Casamasima's discussion weaning AGAIN, GAVIN now alomost 18 months, 14 corrected
"so we are all oral and have been since I first started. he has ups and downs but over all seems to be progressing. HIS reflux is somewhat controlled at this point too. THAT also has ups and downs that I sometimes have NO idea what triggers…"
17 hours ago
Olga replied to Genet Harris's discussion NG tubie trying to avoid the G-tube . . . . .
"Hi Leiah -- you might not be able to see the files if you're looking at the site via phone. If you go back to page 2 of this discussion, you'll see files attached right below a reply: it will be a little icon with the file name. Also on…"
20 hours ago
Kerry replied to Olga's discussion Weaning Insights from an OT (explains some of the problems)
"Celia, that is the most difficult part for me. Doing it all alone. I can't me go to her G doctor or dietician for help because they will tell me she's not drinking enough formula or gaining enough weight. So I'm avoiding them for now…"
22 hours ago
Leiah and Christine S. are now friends
yesterday
Christine S. replied to Genet Harris's discussion NG tubie trying to avoid the G-tube . . . . .
"Send Olga a message. She is extremely helpful. Do you have any suport for this wean or are you going it alone. You may want to reach out to Markus too. He's on this forum and here is his email. He is willing to do consultation via skype. (which…"
yesterday
Christine S. replied to Christine S.'s discussion Can I wean straight to solids?
"Is she on narcotics? And my LO is 4 months too, as of the 18th. So far Ella hasn't been overly receptive to solids either. But I think she is young. She is also struggling with constipation. So much going on in such a small body. Can I ask hw…"
yesterday
Leiah replied to Genet Harris's discussion NG tubie trying to avoid the G-tube . . . . .
"Sorry to jump on your post and I hope you don't mind but having read the replies i am keen to see the files Olga has posted to help home wean, how can I find these? Thanks"
yesterday
Leiah replied to Christine S.'s discussion Can I wean straight to solids?
"Hi, I'm also new to the group and my story is exactly the same as yours, only difference is my LO is 4 months. We've started weaning ( in day three), recommended age is now 6 months in UK though it used to be 4 months so we are a little…"
yesterday
Leiah updated their profile
yesterday
Profile IconAmanda Mugge, Leiah, Soni and 6 more joined Tube Fed Kids - Deserve to Eat
yesterday

Blog Posts

Update on tubies

Posted by Heather on July 9, 2014 at 7:00pm 1 Comment

Great update on my kiddo's. My sons tube is out. We had to be really careful with weaning off of the NG tube because he would have hypoglycemia if he did not get enough calories. We took away 1/2 an ounce each time for 4 feelings a day and would not decrease again until he was taking what we took away. We also increased his bedtime feeding so that his stomach expected more food in it and it helped increase his hunger at other feedings. He always eats more in the evening and during the night so… Continue

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed.…

Posted by chelsea on July 7, 2014 at 12:42am 7 Comments

My son has had a g tube since March. He was born with a small nose and he couldn't breathe. Because of his problems breathing and his several nose surgeries he was unable to learn how to bottle feed. He's almost 6 months now and He recently passed his swallow study so we begun giving him baby food. Ever since then his sippy cup drinking ( he hates bottles) has really picked up. My problem is that he usually gets 5 oz through his feeding tube. I decided to only let him get food orally except… Continue

Just checking in!

Posted by Jane Marie T. on July 6, 2014 at 1:42pm 3 Comments

Just checking in! Our little Becky is four years old now and it's been more than three years since her wean.  It was such a hard decision, and we had spent more than four months looking into it, and in the end we took the plunge and did a wean at home from her ng.

She had already been taking part oral, and we realized part way into her wean that we had to help her out by squeezing her bottle for her.  We did that for a long time--having to squeeze it to help her get enough…

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Elijah's stats

Posted by Melanie on June 10, 2014 at 1:05pm 0 Comments

For those that want to know Elijah is 19 months now, born 3 months early with hydrocephalus, had NG tube for 14 months had the gtube placed at 14 months (11 months adjusted)--can't believe he had it for that long now!

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